ExtremeLife1986 wrote on May 25^th, 2005 at 2:23pm:

For the many new mmer’s who come to this website for information, and are scared and know nothing about this disease, as I did, I have to say again, for them, that moyamoya does NOT throw anything like a viral infection at you!!  MM is a cerebrovascular disorder. Unfortunately there are people who have other things associated with this disease, but not a viral infection in respect to being associated with moyamoya.

There are many websites where you can read up about viral infections and see that a viral infection can be as simple as a common cold, so yes, you can have a viral infection along with mm as with many other common problems, and yes a viral infection can possibly effect you and your mm. For instance, you could get dehydrated and it could trigger problems, fever, etc, but the facts to date are, a viral infection is NOT related to or the cause of MM from any research to date. The cause of MM is uncertain, so to imply mm is related to or in association with a viral infection, without stating what viral infection it's associated with, and the facts, is misleading to people learning about this disease.

I hope you can see why I’m concerned. Some of the most serious communicable diseases known to medical science are viral in origin. Viruses are spread from one person to another. So, I hope you can see how that may frighten new people coming here for MM information.

Yes it's been said that some of the following conditions are associated with mm: Like... Meningitis, Down's syndrome, Sickle cell anemia, etc, but that does NOT mean that they were caused by mm, (or vice versa) but rather associated with mm in some individuals.

ExtremeLife1986 wrote on May 25^th, 2005 at 2:23pm:

I'm also confused about the above statement. I'm sure that every person has had a viral infection at one point, but certainly NOT because they have moyamoya. Also, as I've read, antibiotics are useless against viral infections.(??)

MM is a terrible disease and my heart aches for the problems you and others have suffered, God love ya’s! I pray one day soon we will have all the answers, but for now, with it being so rare and not clear to the medical community, I feel we have to get the information out there as accurate as we possibly can to help others as well.

Mar

Carol,

If moyamoya is an autoimmune disease, as you say, could you please cite the appropriate references that say that??

Here's what I came up with trying to help me figure it out, because so many diseases are in the Autoimmune disease catagory. http://autoimmune.pathology.jhmi.edu/whatis_disease.cfm

Mar

ExtremeLife1986 wrote on May 26^th, 2005 at 1:45am:

Certainly sweetie, a lot of references are right here on the website under

Links

. Some major University’s’ and MM specialists’ links here are very informative, and from those websites they also have links to studies and research. Etc. I would be more than happy to share any specific information and cite references. Simply state what specifically you want references to. I believe learning all you can about this disease is the most important thing we can do. Read, Read, Read. It can save lives. That’s a very good practice to look for and ask for references, it keeps us accurate in helping others. Also check dates, because some MM information out there is outdated. I talked to a man not so long ago, who said he wasn’t seeking a neurosurgeon for his MM diagnosis because he read that adults don’t do well with the surgery, and you know for a fact that’s NOT true, but unfortunately, the outdated information does in fact state that. I believe it’s so important when stating certain medical facts that we cite references, as not to harm others and learn together. Our common goal is to help each other in any way we can.

Mar