hi im jon im needing some help/advice/ information on moya moya i dont personally have it i recently found out someone i care about has it im completely in the dark here anything would be very welcomed AIM banx867512 YIM hayelion2@yahoo.com or hayelione1 MSN hayelione1@hotmail thank you alot

Hi Jon,    Welcome to our MM family!

We'd be more than happy to help you in any way we can. However, we need some specifics to know where to start, but that's why we're here. So if you could perhaps give us some details, we'll know how to begin.

As Rena said, this website has a wealth of information on the disease itself, under

Links

. I would also advise you to watch the Stanford video about Matthew Fong. It helped me so much when I was in the dark about this disease.

IMO, the most important advice I can give you at this point is, READ and LEARN all you can about this disease, it will help the one you care about, by knowing the facts. This is a rare and progressive disease and unfortunately not everyone in the medical community is familiar with MM, and the decisions they'll have to make down the road need to be informed decisions.

You're heading in the right direction by researching this disease. You can't go wrong, and we're here with any help in the process.

Good luck and God bless,
Mar