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tomg

Experienced Poster

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West and wewaxsation at
wast. What I crave.

Posts: 216
HowellNJ, USA, usa, 499, 119, NJ, New_Jersey
Gender: male

Believe it or not, it's finally time for surgery.
Jul 13^th, 2005 at 4:58pm

Some of you probably know me and my story, I had a major stroke 3 1/2 years ago and was immediately diagnosed with moyamoya. I've been on this site almost from the beginning and have been cooresponding with and reading about my fellow moyamoyers surgery stories. I have been told that Ididn't need surgery because of very good blood flow and being asymptomatic for the last 3 years.
After undergoing a battery of tests at NY Presbyterian Hospital, last week, I was told that there was a definate decrease in blood flow that could be contributing to my extreme fatigue and some other slight problems and now EDAS surgery was finally recomended. can you believe it?
My doctor is DR. Connolly whom I feel is as good as anyone. He played it conservative and only recomended surgery when the "risk/benefit was right.

My surgery date is August 15th and I'll keep you all posted.

Stay well love ya all, Tom G.

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kelmo

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Posts: 24
Sicklerville, USA, usa, 494, 125, NJ, New_Jersey
Gender: female

Re: Believe it or not, it's finally time for surge
Reply #1 - Jul 13^th, 2005 at 7:01pm

Best of Luck Tom! I'm sure you'll do fine! From what little I have read from you, you seem like you have a positive attitude, which is sometimes half the battle..You will be in our prayers, everything will work out. How has your recovery from your stroke been? Just curious....... Pat (Kelsey's Dad) ---- FEllow S Jerseyian

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Chelsie Experienced Poster Offline Posts: 127 Columbus, USA, usa, 418, 135, OH, Ohio Gender:	Re: Believe it or not, it's finally time for surge Reply #2 - Jul 14^th, 2005 at 8:18am Good luck Tom! I will be thinking of you before, during and after your surgery. I just know you will do great. Hang on to your positive attitude and you can get through anything. By the way....was it you who suggested a get-together for those of us in the Eastern US??? Hugs from Ohio~ Chelsie
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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: Believe it or not, it's finally time for surge Reply #3 - Jul 14^th, 2005 at 9:16am Good luck, Tom! Sounds like you are on the right track and are confident with your decisions thus far. That's a really great feeling! We'll be thinking of you through your surgeries and recovery! Good luck, again! -Shari
Back to top	A smile is contagious...start an epidemic! Dr. Scott did my surgeries - 12/29/03 and 1/5/04 IP Logged

Seachelles Old-Time Poster Offline God never gives us more than we can handle. Posts: 681 Fredericksburg, USA, usa, 474, 157, VA, Virginia Gender:	Re: Believe it or not, it's finally time for surge Reply #4 - Jul 14^th, 2005 at 12:14pm Tom, I wish you the best of luck with you surgery. I will keep you in my thoughts and prayers as you go through this process. Michelle
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cubbie Experienced Poster MM.com Benefactor Offline Stanford MM Survivor,May 2005 Posts: 168 Delaware, USA, usa, 418, 133, OH, Ohio Gender:	Re: Believe it or not, it's finally time for surge Reply #5 - Jul 14^th, 2005 at 1:16pm Hi Tom Good Luck Tom!You have waited a log time,I know what thats like.You are in our prayers.You will do great! Wish You A Good Recovery! Kevin
Back to top	Kevin Allen- I was so much older than,I am younger than that now,The Byrds,My Back Pages IP Logged

LisaH

Senior Poster

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Be thankful in all circumstances

Posts: 261
ArlingtonHts, USA, usa, 358, 120, IL, Illinois
Gender: female

Re: Believe it or not, it's finally time for surge
Reply #6 - Jul 14^th, 2005 at 2:29pm

Wow Tom!

After I picked my jaw off the floor I almost cried! I am so happy that you are finally having the surgery which hopefully will help you to feel better both physically and mentally. No more "time bomb" feeling! Smiley

I am sure you will do wonderfully with the surgery but you will be in my prayers, as always, as you continue through this MM journey. Please see if someone (your wife?) can post with updates after your surgery.

Keep those spirits high!
Smiley

Lisa

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"Two roads diverged in a wood, and I--I took the one less traveled by, and that has made all the difference." - Robert Frost

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Shan

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MM Survivor ~ May 27,
2005

Posts: 849
Honolulu, USA, usa, 376, 346, HI, Hawaii
Gender: female

Re: Believe it or not, it's finally time for surge
Reply #7 - Jul 14^th, 2005 at 4:01pm

Tom,

Sounds like you've got it all under control and waited for the right time to have your surgery. I just recently had mine about a month and a half ago and am so grateful for DJ and this wonderful site. Please know that we are all here for you and look forward to hearing about your progress...

Take care,
SFH

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"Love, Accept And Respect All Things And All Situations In Life … They Are Especially&&Designed For Your Personal Learning" ~Howard Willis

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gotchlorine

Old-Time Poster

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Our daughter, Tara, lives
with MM

Posts: 776
San Jose, USA, usa, 24, 158, CA, California
Gender: female

Re: Believe it or not, it's finally time for surge
Reply #8 - Jul 14^th, 2005 at 9:02pm

Hi Tom,

Wow . . . amazing news after so long! I'm sure you're not looking forward to the surgery, but like Lisa said "no more time bomb feeling". I'm glad to hear it's scheduled, and will look forward to your updates on the whole process. Of course, your MM family will be here for whatever support you need!

Hugs from out west,
Jill

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CarasMOM

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My 11 year old Cara has
MM.

Posts: 525
Sedalia, Missouri
Gender: female

Re: Believe it or not, it's finally time for surge
Reply #9 - Jul 22^nd, 2005 at 2:12pm

Hi Tom....I remember your posts where you even mention...scary to be reading about those getting surgery when you can't, you were always wondering if it was the right thing to wait. Like all of us we always felt something would happen any time if our child, spouse or even ourselves didn't have surgery. You have our prayers...while you have your surgery on the 15th. Many of us will be in Vegas...we'll have a group prayer for you then.

Warm Hugs along with lots of prayers, CarasMOM

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Warm Hugs and Prayers, CarasMOM (Carol)

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