CarasMOM wrote on Jul 24th, 2005 at 7:51pm:Cara isn't an adult but has had way too many TIA's/seizure-like spells......she knows when its happening but can't talk for 45 seconds but comes to me writes with her finger TIA in the air...her mouth slightly open, tongue seems to be frozen in place...15 to 30 seconds....then closes mouth (sometimes little drool)...then yawns...as it ends (shes had over 300 by now..but so tiny but having that we notice it immediately. But she doesn't fall asleep though. Shes been on anti seizure medication (Trileptal) about 10 months now. She was having up to 12 to 14 a day....now some days none...some days three or four. I learned alot by going on the eplipsey website even though her doctors tell us they aren't seizures.
Our neurologist has given us a name for these different episodes that Michael goes through. He calls them
partial complex seizures. I was glad to have a name to put to it, because while we have come to terms to knowing what a TIA is, we have also noticed that the last few months, Michael has had something that while seemed dramatically different, does not resemble an epileptic seizure at all.
For example, Michael never "shakes" or "convulses", like you might see in a grand mall seizure. But, while he is "no-no-no"ing, sometimes he gets as stiff as a board. Sometimes, he will turn his head to the side and moving his head into a different position is impossible. One way that I "label" these as different than his TIAs, it that his mother and I cannot control his bodily movements any better than he can. During a TIA, we can.
He also becomes DEAD WEIGHT during a partial complex seizure. It's a bizarre thing that I have never understood. He is 75 pounds (or so) any other time of the day, but let him have a partial complex seizure and this kid feels like he is made of LEAD.
Quote:Thinking back when Cara had her stroke that took her personality and many things away, including bladder control, had no fear of anything or excitement.....she did go through a period where she was repeating things several times. She was like a two to three year old but was six and half.....it was a set back between surgeries...after the second....she moved leaps and bounds pretty fast over six months...little things we started to notice...such as hearing loss...that has come back alot.
Good deal! ;
Michael, at 17, has never been toilet trained. He was "trip trained" for about a year, meaning that if someone could always be available to put him on a toilet EVERY 40 minutes, all day long, and never forget - he would not wet himself. As he changed teachers throughout his schooling, and yes, we became lazy with it as well, he went back to wetting his diaper. He has NEVER used the toilet for "#2", which is why I say he has never been toilet trained. I'm honestly not sure if he has any control over that.
Thank you for your post!
-= Dewski =-
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ADULTS and TIAs (Read 3351 times)
