I got to do a very brief interview with KITV4 6 o'clock News last week Wednesday, August 10, 2005. I only received the phone call about 2 hours prior to the interview, but I didn't want to give up this opportunity.  I was hoping that they could do a more "in-depth" story on what moyamoya actually is and interview my neurologist to answer any direct medical questions; however, I believe this interview was just to promote my recent fundraiser event coming up so they wanted to basically hear my story....  Our interview lasted about 30 minutes, but the segment that "aired" was no more than about a minute and a half to two minutes....way too short to explain what MM is and how it affects individuals....

Nonetheless, I've received responses from others here in the Islands that also have this rare disease.    I hope to be able to organize a Hawaii Moyamoya Ohana Support Group where we can meet once or twice a month.  ("Ohana" means "family" in Hawaiian...)   I'm also directing them to visit this site if they haven't already been here.....to post/look for questions & answers, concerns and most importantly, support from all of you!    

Slowly but surely, we will all work together to raise MM awareness.

Aloha,
Shan

http://www.thehawaiichannel.com/news/4836773/detail.html

http://www.thehawaiichannel.com/news/1298194/detail.html


p.s.  Hillary, please PM me if you can send me a copy of your interview.   ;

Thanks Chelsie!  My initial reaction when seeing the broadcast was a feeling of embarrasment... I thought I looked terrible  ...but I know my intentions and the reason for doing it and the possibility of touching other's lives.....which makes it all worth it!  

Wow...your photo shoot took 2 and a half hours on top of the 45 minute interview?  phew....

By the way, how has Yoga helped you?  I signed up for my first Yoga class (Yoga & Anxiety), but it was fully booked.    I'm not quite flexible though, so I have my reservations about it anyway.)  I picture someone in leotards sitting on the floor with their legs behind their head. OUCH!   hee hee...  Seriously, doesn't one have to be "somewhat" flexible or in shape for Yoga?  The class I signed up for said that patients have to be in "general good health" in which I'm not quite sure I'm there yet.  Please let me know about how Yoga helped you....I'd like to hear about it if you don't mind sharing...  

Thanks,
Shan

p.s.  I just looked at the video, and I noticed they focused on my hands at one point...did anyone notice DJ's blue MOYAMOYA reminderband?    I wish I turned it so they could see "MOYAMOYA.COM" better....