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CarasMOM

Old-Time Poster

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My 11 year old Cara has
MM.

Posts: 525
Sedalia, Missouri
Gender: female

Cara's neuro appt today.
Aug 6^th, 2005 at 12:45am

Dr. Bernes at Phx Childrens Hosp has known Cara from day one...when she was a 2.5 year old. He last saw her about a month after her second surgery when she was having "zillion" of TIA's !!! He put her on Trileptal immediately...before her EEG...and 24 hour EEG....he never saw her again until today.

He walked in the waiting room with a student resident...totally shocked looking at Cara...trying to explain to this young new doctor Caras case...I was lipreading very hard seeing how he explained it to him.

He said it all took some time to come to conclusion to figure out what Cara had...we were so sure what she was having was MS related (he never mentioned that to us but knowing what MS is I can understand why)...but none of the tests showed any true signs of MS, nor any classic signs of MM. He went on and on describing to this young man all the things Cara did...while he did ...Cara laughed and giggled and kept hugging Dr. Bernes, telling him "I am going to Las Vegas next week?"....He looked at me...GOSH...I have never seen her doing SO WELL...shes a completely different person..WOW. I also told him we were meeting people with MM in Vegas...He thought that was great.

He is going to order a MRI and MRA...and get those off to Dr. Meyers in Rochester...and we'll just keep in touch on annual basis. And if needed he'd be happy to prescribe more OT therapy.

I do recall Dr. Meyers telling me that it takes at least 18 months for a person to reach their maximum after a stroke...and Cara has had several....to give Cara lots of time.

Have a great weekend....

CarasMOM

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Warm Hugs and Prayers, CarasMOM (Carol)

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katden Junior Poster Offline My son, Brian is a MM survivor!!!!! Posts: 58 Phoenix, USA, usa, 123, 219, AZ, Arizona Gender:	Re: Cara's neuro appt today. Reply #1 - Aug 6^th, 2005 at 1:20am What wonderful news! We'll have a lot to celebrate in Las Vegas. Can hardly wait to meet you. ......Kathy
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itsme Experienced Poster Offline I love YaBB 1G - SP1! Posts: 125 aliso viejo, USA, CA, California	Re: Cara's neuro appt today. Reply #2 - Aug 6^th, 2005 at 4:40pm Hi Cara's mom, That's what we want to hear! Hugs & kisses to Cara. Great news, itsme
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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: Cara's neuro appt today. Reply #3 - Aug 6^th, 2005 at 5:11pm Great news, Carol and Cara! -Shari
Back to top	A smile is contagious...start an epidemic! Dr. Scott did my surgeries - 12/29/03 and 1/5/04 IP Logged

Shan

Old-Time Poster

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MM Survivor ~ May 27,
2005

Posts: 849
Honolulu, USA, usa, 376, 346, HI, Hawaii
Gender: female

Re: Cara's neuro appt today.
Reply #4 - Aug 6^th, 2005 at 7:42pm

Carol,

It's so great to hear such heartwarming and uplifting stories such as this. Cara is such an inspiration! Cheesy

Also sounds like Cara is ready to take the drive to Vegas! I wish I could be there too...it's going to be awesome! (May I suggest Hawaii for next year's get-together?...hee hee) ; Grin

"ALOOOOOOOOOOOOOHA!"

Thanks for sharing....I'm sure she made Dr. Bernes' day! Wink

Take care,
Shan

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"Love, Accept And Respect All Things And All Situations In Life … They Are Especially&&Designed For Your Personal Learning" ~Howard Willis

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Lore MM.com Benefactor Offline My brother Kevin (Cubbie) has Moyamoya Posts: 819 Delaware, USA, usa, 419, 133, OH, Ohio Gender:	Re: Cara's neuro appt today. Reply #5 - Aug 6^th, 2005 at 9:40pm Cara and Carol, WOW!! Really Great News! I am always amazed by what Cara has gone through and how far she has come. Cara is truly an inspiration to all. Hugs, Lore
Back to top	"What lies behind us and what lies before us are tiny matters compared to what lies within us." - Ralph Waldo Emerson IP Logged

riosdallas Junior Poster Offline Life is an Opportunity That we benefit from Posts: 63 Templeton, USA, usa, 510, 83, MA, Massachusetts Gender:	Re: Cara's neuro appt today. Reply #6 - Aug 8^th, 2005 at 10:33am Hello, Awesome news !!!!! Have FUN!!! in Las vegas !!! your friend lena
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LuangTom

New Poster

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I love YaBB 1G - SP1!

Posts: 21
Coleraine, USA, MN, Minnesota
Gender: male

Re: Cara's neuro appt today.
Reply #7 - Aug 9^th, 2005 at 8:07pm

Wonderful!!! I can understand your joy at Cara's progress. My wife, Dee, is recovering well from her
Craniotomy with STA/MCA Bypass. Her symptoms have
lessened considerably and it is only four weeks since
her surgery by Dr. Eric Nussbaum. The hospital chaplain
told us that the doctor had "magic fingers". I believe him
now. God bless you all and keep the positive feelings flowing.......Tom and Dee in MN

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mg12061 Old-Time Poster Offline Posts: 946 Albany, USA, usa, 492, 84, NY, New_York Gender:	Re: Cara's neuro appt today. Reply #8 - Aug 11^th, 2005 at 6:35pm Wonderful.wonderful news. Cara's been through so much I'm glad things are going well.She's quite a little trooper!! Mary Grace
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Dewski Junior Poster Offline Married. Son has MM. He is 17. Posts: 70 Syracuse, USA, usa, 479, 86, NY, New_York Gender:	Re: Cara's neuro appt today. Reply #9 - Aug 12^th, 2005 at 10:45pm Absolutely EXCELLANT!!!! ; ; ; YOU GO CARA!!!!! [smiley=headbanger.gif]
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