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Mystery Diagnosis (Read 4756 times)
kotipup
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My daughter, Daphne, has
Moyamoya

Posts: 247
Landenberg, USA, PA, Pennsylvania
Gender: female
Mystery Diagnosis
Aug 28th, 2005 at 10:22am
 
I just wanted to share that it looks like the people from Mystery Diagnosis (from the Discovery Channel) will be doing a story on Daphne  Cheesy

We are actually going out to Stanford early, now, due to their filming schedule... we are going out on September 6th!  (We were supposed to go out around the week of the 20th)

We are so glad that they will be able to go out to CA with us... at first they were talking about filming in Philadelphia, and interviewing the doctor at CHOP who diagnosed Daphne (and also sent her home to die), but we were able to convince them that Dr. Steinberg will give them a much better story.

I'll keep everyone posted when we find out when they'll be airing the show.  Also, wish us luck with Daphne's testing -- hopefully, we'll get good news.

Jenny
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Mar
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Re: Mystery Diagnosis
Reply #1 - Aug 28th, 2005 at 10:46am
 
Outstanding Jenny!! Smiley

Please know I'm praying that Daphne's test go well also. There's not a day goes by that you're precious li'l one isn't in my thoughts and prayers.

Good Luck with the filming. Smiley Keep us posted.

Mar
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Lore
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My brother Kevin (Cubbie)
has Moyamoya

Posts: 819
Delaware, USA, usa, 419, 133, OH, Ohio
Gender: female
Re: Mystery Diagnosis
Reply #2 - Aug 28th, 2005 at 3:28pm
 


How exciting Jenny!

I can't wait to see the film.

We are praying for Daphne and wish her well with her testing.

Keep us posted on Daphne's testing outcome and also when Daphne's story airs.

God Bless,

Lore
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"What lies behind us and what lies before us are tiny matters compared to what lies within us." - Ralph Waldo Emerson
 
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gotchlorine
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Our daughter, Tara, lives
with MM

Posts: 776
San Jose, USA, usa, 24, 158, CA, California
Gender: female
Re: Mystery Diagnosis
Reply #3 - Aug 28th, 2005 at 3:45pm
 
Awesome news, Jenny!  We will wait anxiously to see the final product of the filming.

I hope all goes well with Daphne's tests . . . and that we get to see you all while you're in California!

Smiley, Jill
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itsme
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I love YaBB 1G - SP1!

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aliso viejo, USA, CA, California
Re: Mystery Diagnosis
Reply #4 - Aug 29th, 2005 at 12:59am
 
Wow Kotiup,

I'm sure Daphne will pass with an A+ and she will be  great representing all of us with MM. Thank you for keeping us informed and can't wait to see it on air.

God bless you all,
itsme
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STrantas
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MoyaMoya Survivor Since
2003

Posts: 1154
Philadelphia, USA, usa, 490, 122, PA, Pennsylvania
Gender: female
Re: Mystery Diagnosis
Reply #5 - Aug 29th, 2005 at 8:31am
 
Smiley Smiley Smiley!  Awesome, Jenny!  (I love the Discovery Channel!)  Please keep us posted...I'm sure Daphne's tests will go well!

-Shari
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A smile is contagious...start an epidemic!
Dr. Scott did my surgeries - 12/29/03 and 1/5/04
STrantas http://www.facebook.com/home.php?#!/strantas?ref=p STrantas  
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Shan
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MM Survivor ~ May 27,
2005

Posts: 849
Honolulu, USA, usa, 376, 346, HI, Hawaii
Gender: female
Re: Mystery Diagnosis
Reply #6 - Aug 29th, 2005 at 8:39am
 
Smiley Great News!!! This is a chance of a lifetime!  I know you and Daphne will do just fine.  I can't wait to see it.   Smiley

Take care,
Shan
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"Love, Accept And Respect All Things And All Situations In Life … They Are Especially&&Designed For Your Personal Learning" ~Howard Willis
 
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Dewski
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Married.  Son has MM.
 He is 17.

Posts: 70
Syracuse, USA, usa, 479, 86, NY, New_York
Gender: male
Re: Mystery Diagnosis
Reply #7 - Aug 31st, 2005 at 9:52pm
 
kotipup wrote on Aug 28th, 2005 at 10:22am:
I just wanted to share that it looks like the people from Mystery Diagnosis (from the Discovery Channel) will be doing a story on Daphne  Cheesy

We are actually going out to Stanford early, now, due to their filming schedule... we are going out on September 6th!  (We were supposed to go out around the week of the 20th)


;Grin ;GrinGr8 news!!!  XCelAnt news Jenny!!!

We will be thinking about Daphne and wishing everyone the best!!! ;Grin ;Grin

-= Dewski =-
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