Welcome, Guest. Please Login or Register
Moyamoya.com
 
NEW search box below... Search Moyamoya.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday ListDonate  
 





Page Index Toggle Pages: 1
Send Topic Print
Good News! (Read 3953 times)
Nancy_N.
Old-Time Poster
*****
Offline


My daughter Mandy Has
Moyamoya

Posts: 664
Jasper, USA, usa, 436, 230, GA, Georgia
Gender: female
Good News!
Sep 9th, 2005 at 10:39am
 
I'm so happy we found a neurologist, actually a group of them at Emory hospital here in Ga. that are not only familiar with MM but she called herself a specailist. I know we need the proof but she said unfortunatley she has many MM patients which sadly enough was encouraging....does that make sense. The things she said all made sense and coinsided with what I knew so we were pretty pleased with our visit. Dr. Barrow the neurosurgeon is also there and has done MM surgerys so God for bid an emergency arise and something needed to be done quickly before I could get to Stanford Mandy would be in preety good hands I think. Although it would have to be a pretty big emergency for me not to get Mandy to Dr. Steinberg. It was alot of phone calls and searching because no one I called had any idea what I was talking about but the worse part was they didn't even want to listen, very frustrating as alot of you all know. Anyway it made my day yesterday.
Thanks for listening. Smiley
                    Nancy
Back to top
  
 
IP Logged
 
gotchlorine
Old-Time Poster
*****
Offline


Our daughter, Tara, lives
with MM

Posts: 776
San Jose, USA, usa, 24, 158, CA, California
Gender: female
Re: Good News!
Reply #1 - Sep 9th, 2005 at 10:49am
 
That's great news, Nancy!  It will be very comforting to have someone you trust nearby, and I'll say my prayers that there won't ever be an emergency big enough for you to need to get back to Dr . S!

Smiley,
Jill
Back to top
  
sca4gold2002  
IP Logged
 
Mar
Ex Member


Re: Good News!
Reply #2 - Sep 9th, 2005 at 10:55am
 
Way to go Nance!! I knew you'd find someone that you're comfortable with, you're very persistant that way...lol.. hehehe But most importantly, lemme know what Mandy thinks of her new doctors there, and also how she likes Georgia period?

I've read nothing but good things on here about Dr. Barrows, from "SCgirl" so I feel better too, but I've also heard doctors say alot of things that weren't necessarily true, so keep your eye on 'em girl...lol.. just kidding.

Thanks for keeping us posted, I'll sleep better now.

Love ya's
Mar
Back to top
  
 
IP Logged
 
Lore
MM.com Benefactor
***
Offline


My brother Kevin (Cubbie)
has Moyamoya

Posts: 819
Delaware, USA, usa, 419, 133, OH, Ohio
Gender: female
Re: Good News!
Reply #3 - Sep 9th, 2005 at 1:34pm
 
Hi Nancy,

So glad to hear you found someone you are comfortable with taking your Mandy to for MM treatment.  I must say I can relate to doctors not knowing what your even talking about when you say the words moyamoya.  Excellent on your part for your persistence and not settling for anything less than a MM specialist for Mandy.

I too hope you don't have an emergency that requires you taking Mandy 3,000 miles across country however, I know what you mean as I took Kevin almost 3,000 miles to be treated by Dr. Steinberg and would do it again in a heart beat.

Hugs to you and Mandy

Back to top
  

"What lies behind us and what lies before us are tiny matters compared to what lies within us." - Ralph Waldo Emerson
 
IP Logged
 
sc_girl
New Poster
*
Offline


THRIVING not just surviving
since July 2003!

Posts: 26
Greenville, USA, usa, 443, 204, SC, South_Carolina
Gender: female
Re: Good News!
Reply #4 - Sep 9th, 2005 at 9:41pm
 
Hi Nancy! ;Grin

Just read your post and wanted to let you know that the entire Neurological staff at Emory is top notch, especially Dr. Barrow. You can go to "Surgeons With Bypass Experience" on this site, and scroll down to the bottom of page 1 and read all about my positive experiences at Emory.  Feel free to contact me if you have any questions, and just know that you're in expert hands!

SC Girl (Kris)   Smiley
Back to top
  
 
IP Logged
 
Seachelles
Old-Time Poster
*****
Offline


God never gives us more
than we can handle.

Posts: 681
Fredericksburg, USA, usa, 474, 157, VA, Virginia
Gender: female
Re: Good News!
Reply #5 - Sep 10th, 2005 at 5:47am
 
Hi Nancy!

So glad that you found a good team of doctors in Georgia for Mandy!  I know that takes a BIG weight off your shoulders. 

I hope everything is going well for you and your family in Atlanta.  I'm sure you will have stories to share for all of us.  Smiley

Michelle
Back to top
  

Michelle
Chelles4U Chelles4U  
IP Logged
 
Shan
Old-Time Poster
*****
Offline


MM Survivor ~ May 27,
2005

Posts: 849
Honolulu, USA, usa, 376, 346, HI, Hawaii
Gender: female
Re: Good News!
Reply #6 - Sep 10th, 2005 at 1:39pm
 
So glad to hear the great news about Mandy's new doctor!  Wink  

Best wishes to you and your family in your new home... ;Grin

Take care,
Shan
Back to top
« Last Edit: Sep 10th, 2005 at 1:40pm by Shan »  

"Love, Accept And Respect All Things And All Situations In Life … They Are Especially&&Designed For Your Personal Learning" ~Howard Willis
 
IP Logged
 
STrantas
MM.com Benefactor
***
Offline


MoyaMoya Survivor Since
2003

Posts: 1154
Philadelphia, USA, usa, 490, 122, PA, Pennsylvania
Gender: female
Re: Good News!
Reply #7 - Sep 11th, 2005 at 9:34am
 
Congrats, Nancy, on finding a local neuro for Manday.  That must be such a relief!

-Shari
Back to top
  

A smile is contagious...start an epidemic!
Dr. Scott did my surgeries - 12/29/03 and 1/5/04
STrantas http://www.facebook.com/home.php?#!/strantas?ref=p STrantas  
IP Logged
 
Page Index Toggle Pages: 1
Send Topic Print



Moyamoya.com Forum » Powered by YaBB 2.4!
YaBB © 2000-2009. All Rights Reserved.


©2003-2018 Web Vision Enterprises LLC All Rights Reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.

You may view our privacy policy and financial disclosure statement here





Valid RSS Valid XHTML Valid CSS Powered by Perl Source Forge