Dewski,
            I am so very sorry things aren't going well for Michael just keep praying the prayers will bring him through. There is nothing more agravating than things going wrong and not living up to your expectations when your child is in the hospital, I had many, many years of living in the hospital with my son who had a heart disease and I so can relate, it just adds to the stress of it all, and most of the time there's nothing you can do. Please tell him our thoughts and prayers are with him and you and your wife too. He's a strong little man he'll be fine we have to believe that. You don't need to respond to any posts we know you've read them as long as we can support you thats all matters. You and your family hang in there. God Bless!!
                          Nancy

Dewski -

I'm so sorry to hear that your Mikeman continues to go through difficulties.  I wish I could say something that would offer more support, but just know that Michael, and you and your wife continue to be in my thoughts and prayers.  As Nancy indicated, please dont feel obligated to respond to our posts...just know we are here to support you.  Sending continued hugs[smiley=hug.gif]  and  our hearts are with you....

-Shari

Dewski,

I am so sorry that Michael is having so much trouble recovering from his surgery .  I don't know what to say, except that I will continue to pray for you guys. 

I hope things turn around for you soon.  Michael seems like a very strong person.  He is in my thoughts and prayers right now.

Jenny

I guess my post was a bit on the "bleak" side, huh?    I didn't know whether to be ticked or if I should just bawl.   As usual, I came to mm.com, got it off of my chest and I feel better - eternal thank yous go out to all of you.  ;

Michael is improving.  They had him on a great deal of medications.  They cut back and/or discontinued a few of them.  He was on an anti-convulsant<sp> called Adavan that knocked his lights out, even with a 1/2 dose that he got yesterday.  This morning, he seems to be coming around - in stages.  I'll take that!     

We're going to take him down to the toy/activity room today.  (It's actually PT, so don't tell Mikeman    ).  He will eat today, because we really really really need him to, and his output...  is outputting.  LOL

His fevers are gone (thank God), his upset stomach has stopped for roughly 16-18 hours (thank God), and we are hopeful that the tonic (severe) clonic (rigid stiffness followed by shaking) seizure was a one of a kind.  His electrolytes were all off, and once his Dr. pinpointed what needed to be done, he felt better and is acting better.  His salt levels were definately low and not are where they are supposed to be.

Michael's smile returned to us all last night.    That would be the Mystery Man's medicine for his parents.     We will get through this, it just may take a little longer than our original plans is all.   Hopefully things have turned the corner and we can get him back on his feet - well knees (LOL) in short order.

Thanks again for the ear and the shoulder.   

-= Dewski =-

!!!  All right Michael!!!  Way to go!

Dewski - even in your post you sound much more upbeat!  That's awesome that Michael has turned a corner for the better!

May he continue to have successes in his recovery!  Your entire family will continue to be in my thoughts and prayers!

-Shari

Dewski,
             AWESOME NEWS!! a step in the right direction I know its not over yet but going the right way. Just keep praying and keep Michael fighting. That so great to here. PRAYERS......amazing.
                                 Nancy

I think BCH is going to raise our rates here shortly!   

It's Tuesday and Mikeman seems to take one step forward and then a step (sometimes two) back, but we are nothing if not persistant!!

He did manage a small piece of pizza last night and didn't get sick until this morning, so I'm sure SOME of it got to him.     His two half-sisters drove 5 hours to see him for 3, and then drove another 5 hours back home!

He doesn't have a whole lot of strength or ambition at the moment and taking him down to the play room was just more than he could tolerate.   

This kid has got to get better!!!  (Besides, most of the adults here are Red Sox fans and telling them that you are from New York can be a HUGE mistake!)  LOL   

The docs are coming down today to tell us what is next on the agenda.  I don't honestly know what could be left?.?.?. 

Talk to you all soon,

-= Dewski =-

Dewski wrote on Sep 27^th, 2005 at 1:43pm:


Do you think the anesthesia or the morphine is making him get sick?  I know that the longer they kept me on morphine the longer I didn't eat.  In fact, after my second surgery, I requested no morphine because I couldn't tolerate it.  It took a while for me to eat anything after my first surgery because I was affraid I was going to get sick.  So!  Maybe start with something that would be easier on his stomach?  Like, clear soup?  Crackers?  Just my opinion...

-Shari

STrantas wrote on Sep 28^th, 2005 at 9:41am:


The doctors are starting to rule that out a little, because it's been awhile since we was on it.  It's still a possibility though.  

Quote:


And a good opinion it is!  It's just that Mikeman eats too few things as it is..  They have been giving him mostly an electrolyte diet via his IV and nasal tube.

It appears that he has a few viral problems going on, so we just have to wait ti out until he improves.  {sigh}

It's been a WiLd RiDe so far!   

-= Dewski =-

Hi Dewski,

I hope today is a step forward for the "Mikeman" "Mystery Man". I just love Michael's nicknames. I know they are names of love and affection.

I can tell you from experience that ANY major operation regardless of the illness/disease can take its tole on you.  It seems normal after such a traumatic experience to take two steps forward and one step back or two back and then go forward again. It can be very much like a roller coaster ride. As for getting sick, anesthesia and me do not get along at all.  I get violently ill with anesthesia.  In fact, I believe I may be allergic to one of the agents used in anesthesia.
 
I know Michael will get better. I just feel it.  He has been through a lot and yet I can see the positives.  Once the doctor's determined some things weren't right (like the low sodium level) Michael showed improvement. Sometimes it is hard to see the positives especially if they are ever so slight and one feels there have been more negatives than positives. On the other hand, sometimes it's those slight improvements we seem to cling to because they represent hope of improvement.

You are all in our thoughts and prayers and we want you to keep us posted on Michael's condition and we want you to feel free to come to us for support in those most frustrating times. Yes, please feel free to vent.  We've all been there and know how you feel and what you are going through. We are ALL here to support you and help you through this.

Hugs and prayers,

Lore

Simply wonderful news. Your going home soon will be in my thoughts.  Your son sounds like a genuine trooper.
Take lots of care,
Stephanie

Awesome news, Dewski!  Your post brought a smile to my face!  Thank you for keeping us updated....hopefully, by the time you read this, you will be packing your bags to get ready to go home!  Well done, Mikeman!

-Shari

Dewski,

Simply marvelous news! That "going home" is the key to Mikeman's improvement.  What a trooper he is. It's just overwhelmingly awesome.  Mikeman is so fortunate to have you for a father and caregiver. You have worked hard to get Mikeman the best treatment and care. My hat goes off to you. You are very special.

I like the painting of the window. That has to be very special for Mikeman.  I'll bet that is really something to see.  I remember when my son was young and he was hospitalized and quarantined for a rare infection. My husband and I drove up to the hospital and saw a sign in his hospital room window and it read "Help! Bring pizza to room 320!" We laughed and knew our son was feeling much better. The nurses actually helped our son write the SOS and the nurses had a pizza party for him later that evening.

Keep us posted on Mikeman's progress.  It looks real positive for him. I know you all will be glad to go home and be with your other son.  Hang in there!

Hugs,

Lore