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Moyamoya.com Forum › Moyamoya Related Topics › Moyamoya Related Information and Support › Fundraiser set for girl with rare disorder

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Fundraiser set for girl with rare disorder (Read 1938 times)

Seachelles Old-Time Poster Offline God never gives us more than we can handle. Posts: 681 Fredericksburg, USA, usa, 474, 157, VA, Virginia Gender:	Fundraiser set for girl with rare disorder Sep 16^th, 2005 at 3:17pm This is the link to an article that was posted in the Concord Monitor today. The Concord Monitor is out of New Hamshire. http://www.concordmonitor.com/apps/pbcs.dll/article?AID=/20050916/REPOSITORY/509160321/1001/NEWS01
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Lore

MM.com Benefactor

Offline

My brother Kevin (Cubbie)
has Moyamoya

Posts: 819
Delaware, USA, usa, 419, 133, OH, Ohio
Gender: female

Re: Fundraiser set for girl with rare disorder
Reply #1 - Sep 16^th, 2005 at 3:51pm

Michelle,

Interesting article. Thanks for sharing.

I take it Melanie doesn't know about moyamoya.com? I noticed she wants to get a computer to network with others who have MM. I believe I may call Lindsey and let her know there is an internet MM support group. What about a foundation? Isn't one already established? I believe that ocurred prior to me coming to the web site. What is the status of the foundation?

I was glad to see the exposure on moyamoya in the media but my heart goes out to Melanie. It sounds like she has been through a lot in a short period of time and must be young - maybe high school age.

Hugs,

Lore

"What lies behind us and what lies before us are tiny matters compared to what lies within us." - Ralph Waldo Emerson

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Shan

Old-Time Poster

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MM Survivor ~ May 27,
2005

Posts: 849
Honolulu, USA, usa, 376, 346, HI, Hawaii
Gender: female

Re: Fundraiser set for girl with rare disorder
Reply #2 - Sep 16^th, 2005 at 11:56pm

Thanks Michelle. I hope that her fundraiser is a success. I recently had one here where I live, and I am still so amazed at the outpour of support...especially from people I don't even know who were so generous! The "Aloha" spirit definitely shined through... ; Grin

Lore, I do hope she finds this site. It's awesome! That is so kind of you for wanting to get in touch with her! Wink

Is there a MM foundation? I'd like to know more about it if anybody has info.

Thanks again, Michelle for sharing.

Take care,
Shan

« Last Edit: Sep 16^th, 2005 at 11:57pm by Shan »

"Love, Accept And Respect All Things And All Situations In Life … They Are Especially&&Designed For Your Personal Learning" ~Howard Willis

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