Hi Mary Grace,
Unfortunately,
I am a licensed insurance agent in Ohio and have been in insurance in various capacities over the past 30 years. It really depends on a lot of factors as to whether it will be easy or difficult to get a surgery approved. I would need to have more information to lead you in the right direction. Here are some things I would need to know:
What type of insurance does the child have? Is it private insurance (HMO, PPO etc) or Medicare or Medicaid?
What type of surgery does this child need and for what? The reason I ask this is because the surgery may be considered experimental and/or investigative. The fact that you mentioned the surgery is rare may be the reason the surgery has been denied. But I would not give up. Especially if nothing else has worked and it is the only known surgery available to help this child.
What was the reason for the insurance denying or not approving the surgery to be performed by Dr. Scott?
I do know, from past experience, if you contact your congressman, he/she has to respond. Many will assign a staff member to assist you. If the child is considered disabled, you can also call the Civil Rights Commission in your state and they may also get involved. It is certainly worth a try.
If you can get me the answers to the above questions, I will be more than happy to assist this family in anyway I can to help get this child any needed surgery. If you would prefer, you can PM me.
Hugs,
Lore