Holly went to the Eye Doctor this afternoon because she was having some blurry vision the last couple of weeks.  He said her vision was 20/20.  He also said she is suffering from something called accomadative fatigue.  We are still trying to figure out exactly what that is.  My question to everyone here is, does anyone else have this problem?  If so I would love some feedback on it.  We are in the process of getting a referral to an eye therapist which is apparently the only thing that will help her (glasses won't).  I'm wondering if this is some how linked to MoyaMoya.  Does anyone know?

Would appreciate any info that anyone could give.

Thanks
Hillary

Hillary~
I had long periods of time when my normally good vision was blurry. It came and went. Tried to correlate it with something but couldn't. Had it checked by two eye doctors who couldn't figure it out. It seems that it happens less frequently. I don't know if it was stroke related or mm related or even if I had it prior to mm realization. I sense that the bad vision days were a factor in healing after the strokes...the blurred (or just 'not right') vision prevented me from doing things, feeling confident about being places unless I knew then well, or could sit still, etc. I was ok when I was in familiar places (like home). Took me awhile to expand my territory. It's also tireing having blurred vision, tireing dealing with it and wondering about it. But then I'm almost half a century older than Holly and have been stroked!!!!!

I hope that Holly can zip thru this with knowledge, her vibrant youth, character, family love and community support.

Lots of Love,
LA

hey me too...... my first stroke was about 4 weeks ago.. but i've been having problems with what were described as "blurry-eyed migraines" for 6 years now..... often without the actual migraine....
doc's haven't decided/pin-pointed yet if they're related to MM yet (or if so they haven't let me know!!)

My daughter, Daphne is way more involved that most on this board (maybe even anyone on this board), so I hope sharing her experience doesn't scare anyone.    Just keep in mind that each case is different, and Daphne is VERY unique.

At any rate, she had "normal" vision as a newborn, and it seemed to detioriorate around the same time that she developed a seizure disorder at 3 months old.  She definitely had vision, but her tracking was not nearly as consistant.   At that time, we had her eyes checked thoroughly, and they appeared to be "normal".   When Daphne was about 8 months old, I noticed one of her eyes was getting "lazy", and her eyes just didn't look as bright.  We saw an opthamologist, who saw significant scarring on her right retina, and also optic atrophy (on both sides, but right much worse than left).  Over time, this seemed to worsen, and Daphne eventually lost almost all her vision in her right eye.

Daphne had two strokes in January of this year (at about 15 months old), and finally was diagnosed with MM disease.  She had her surgeries with Dr. Steinberg in March, and has done really well.

We noticed that Daphne's original angiogram report seemed to state that her right opthalmic artery was supplying blood to the left side of Daphne's brain (which was severely starved for blood, and which was 20% smaller than the right side) , and I came up with this theory that Daphne's body had rerouted blood away from her right eye, out of necessity, because the left side of Daphne's brain needed the blood more.

I mentioned this to Dr. Steinberg during our last visit at Stanford, and he thought the theory made sense.  He said there was no way of knowing for sure, and that in a normal brain it would be very unlikely that an artery would redirect blood in such a manner, but that in Daphne's case, it could very well happen.

Jenny

BTW -- Daphne has pretty decent vision in her left eye, and Dr. Steinberg thinks that if Daphne's visual detioration was due to lack of blood flow - since her surgery seems to have been a success - she should have no more visual loss 

I had my eyes checked a couple of weeks ago.  My left eye needed more correction than my right eye.  My left eye also has optical aouras (sp?) - they are migraines without the pain according to my opthamologist.  I've also noticed that when I have headaches, my eyesight is blurry.  I got new glasses today, and my left eye was tired by the end of the day because of the stronger correction.  I'll give it a couple of weeks and then change it if I need to.  Hope this helps.  Lee

Tylers vision had always tested normal, but a year before his strok his left eye started turning in. The eye doctor said it was a combination of his CP and being far sighted. He went on th explain that since Tyler had CP the muscles in his eye were weak and and when they tried to compensate for the farsightedness it made his eye turn in.

I just find it weird that Tyler got his glasses and hearing aids the year before his stroke.