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Daphne's Debut: At Last (Read 2049 times)
shgr
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Diagnosed December 2003

Posts: 144
raleigh, USA, usa, 469, 184, NC, North_Carolina
Gender: female
Daphne's Debut: At Last
Jan 9th, 2006 at 10:52pm
 
Well done!  What a wonderful segment on Moyamoya.  Thank you so much for reliving such a frightening time in Daphne's life.  You absolutely helped to introduce the viewers ta MM and its possible symptoms.  What a big step you have taken for all of us.
Thank you!!!!!!!!!!!!!!
SHGR (Stephanie)
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Most of the important things in the world have been accomplished by people who have kept on trying when there seemed to be no hope at all. Dale Carnegie
 
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katden
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My son, Brian is a MM
survivor!!!!!

Posts: 58
Phoenix, USA, usa, 123, 219, AZ, Arizona
Gender: female
Re: Daphne's Debut: At Last
Reply #1 - Jan 9th, 2006 at 11:02pm
 
Wow! What a wonderful episode! Brian and I got a little weepy as it brought back so many memories. We all must say thank you to Daphne and her family for advancing the cause. We are blessed to have so many people committed to helping   others with this disease. And, by the way, that's one beautiful baby!

Love..............Kathy and Brian (Dennis was at work and will watch it later)
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KathyVM
 
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Jane...Chloes Mummy
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Keep smiling

Posts: 20
westyorkshire, England, europe, 177, 210
Gender: female
Re: Daphne's Debut: At Last
Reply #2 - Jan 13th, 2006 at 7:26pm
 
Hello
Just watched the clip, and it really brought back some memorys of my own.
My daughter had her 1st stroke at 8 months and her 2nd at 10 months.  I think she was around the same age as Daphne when she had hers ???
Chloe has had both sides of surgery done and has made a good recovery.  Chloe is 8 in February, What age is Daphney now ???
P.s she is an absolute angel xxx
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ExtremeLife1986
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Live For Today !!!!

Posts: 87
Boynton Beach, USA, FL, Florida
Gender: male
Re: Daphne's Debut: At Last
Reply #3 - Jan 16th, 2006 at 4:06pm
 
Hello,

I personally am glade that this has finally come out. It is more shocking to see it on t.v. then it is to read it. It is about time that this got out. Thankyou for helping to get this out there it is about time more info on moya moya is getting out there. I suffer from moya moya to and it is glade to see this condition getting more exposure.
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ßrad
Live4Today Live4Today1986  
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