Hi Avril and Gary and Jane and all our little ones.
Its so reassuring to know that there is a group of MM ers in UK especially parents of MM. We are all going thro the same thing and its so nice to know that despite it being a rare disease, a site like this brings us all together so that we can be up todate at all times and share experiences and advise.
I too have found GOSH great,they are so familiar with MM you feel like you are in safe hands. Dr Ganesan and Claire are great,especially Clair, she answers all my questions promptly and sorts out my accom in patient hotel, she bends over backwards.
Our last stay at GOSH was ok, staff on whole were great all though you do get the occasional grumpy Staff like you said Avril!!!!
I just assume they are having a stressfull day and I try to soften them up to get them to smile!!!
Anyway, must dash, can you believe I am moving to new house this week, then going on Holiday,then coming back to intense training course in work and then off for op, so my head is spinning.!!!!!!!