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moya moya uk (Read 4158 times)
Jane...Chloes Mummy
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Keep smiling

Posts: 20
westyorkshire, England, europe, 177, 210
Gender: female
moya moya uk
Jan 11th, 2006 at 11:26am
 
Hello Everyone
Hope your all well.
I was wondering if anyone in the uk would be interested in arranging a reunion type event ???  I myself dont think i will be able to get to the usa.
Just a thought.
Jane
Chloes Mummy
x
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STrantas
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MoyaMoya Survivor Since
2003

Posts: 1154
Philadelphia, USA, usa, 490, 122, PA, Pennsylvania
Gender: female
Re: moya moya uk
Reply #1 - Jan 15th, 2006 at 7:43pm
 
Hi Jane -

I am from the US but will be in London next month.  How close are you to London?

-Shari
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louise_and_Lydia
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my daughter Lydia is 1
and diagnosed with MM
2002

Posts: 33
Swansea, United_Kingdom, europe, 150, 229
Gender: female
Re: moya moya uk
Reply #2 - Jan 17th, 2006 at 8:06pm
 
Hi Jane
I live in South Wales  with my 10 yr old Lydia who was diagnosed 2002. I would love to meet up with other MMers in UK. especially to share experiences. I have contacted several uk members to chat.

Hope a good response comes from this so that a date could be sorted.

Any where would be ok with me...Im used to travelling

Louise
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love and hugs Louise & Lydia
 
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Jane...Chloes Mummy
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Keep smiling

Posts: 20
westyorkshire, England, europe, 177, 210
Gender: female
Re: moya moya uk
Reply #3 - Jan 18th, 2006 at 6:37am
 
Hello Louise
Nice to hear from you.  Yeh im hoping for a good response and then something can be arranged.
I too am not bothered where, somewhere in the middle !!!
Im from West Yorkshire.
What do you think we could do ???  Where could we meet ???
Lets get the ball rolling !!!
Jane x
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louise_and_Lydia
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my daughter Lydia is 1
and diagnosed with MM
2002

Posts: 33
Swansea, United_Kingdom, europe, 150, 229
Gender: female
Re: moya moya uk
Reply #4 - Jan 18th, 2006 at 7:49am
 
Hi Jane,


Lets think what we can start planning?

Depending on response the options are

1/Central location ie, London or other

2/Venue; ie. Leisure Park, hotel/spa, local attraction,or resturant.

If some of us have kids then  it can be nice to choose a venue which will cater for adults and kids alike.

I notice Shari said she was coming over to London next month so I may email her re that which brings me onto the next point re date

This will depend on who responds ? as to agreeable date,

So whoever responds, perhaps they can put in their suggestions re location,type of venue,preferred dates etc etc etc.

So lets take it from here and see where we go

Speak to you soon

Lou xx
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love and hugs Louise & Lydia
 
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