Hi, Jan.  I can only tell you what I observe in my own daughter, since she's the one with Moyamoya (Daphne's two years old, and had surgeries last March).   I know that she sleeps a lot more than other children her age, and whenever I go places with her, people are always saying "Awww, she looks so tired."

I also notice that she sleeps more on rainy and cloudy days (I'm more tired on those days, too!), and I notice that following her surgeries - slllowwly - she does seem to sleep less during the day, and more at night (hallelujah!).   For a few months after her surgeries she was sleeping so much.  I did wonder if it was a "growth" thing, maybe new blood vessells were growing into her brain

Outside, in really bright sunlight or cold weather, she has always just "shut down".  Within a few minutes of being outside, she'll fall asleep but wake up as soon as we're inside again.

I have no idea what, if any of this, is related to her moyamoya.  It does seem like I've read on this board that other Moyamoya children get more tired than "normal" kids, and that some days are better than others.

Jenny

  Hi Jan,  No you're not the only one.
     My family gets mad at me because I can fall asleep at any time. Jan,  all I need to fall asleep during the day is permission and yes I do yawn alot and when I yawn my left srm shakes.  Does that happen to you too?

     I've been this way since my stroke in 2002 and I don't feel any better or worse since my surgery.

Oh well things could be worse. 

     Take care,     Tom G.

Thank you everyone!!!  I know I'm always asking weird questions, but I'm not sure if I'm the only one going through some weird stuff that never happened before my stroke.  I get approximately 7-1/2 to 8 hours of sleep at night and I can sleep a couple of hours during he day and still go to bed at a regular time and fall asleep easily.  Just was wondering...
Thanks for the support!!

Aloha,
Jan

P.S.  Jenny....Daphne is such a doll.  She's a beautiful little girl!!

Emily,
          Same with Mandy 10 to 12 every night or the next day at least a two hour nap thats the minimum. She is a sleeping machine but they say the brain heals while ya sleep. I'm thinkin Mandy should be a female Einstein by now with no sign of strokes haha! She has a low physical tolorence also she tires easily during activities.
                            Nancy

  One of the most important things to help Kathleen have a "good" day is SLEEP.She needs 11-12 hours a night.If we slack on this  she has a really hard time at school.She works extremely hard both mentally and physically and by 12 she can be exhausted.She has PT,OT speech,Gym,and of course all the school work on top of this ,Oh yeah and she has a short walk to and from all of these special services too.I feel like a broken record sometimes when they tell me she had a hard time with things they thought she knew, or they just couldn't get her to cooperate or get motivated I'm constantly reminding them that she was probably exhausted, and there's nothing we can do to change it you just have to take what you can get.
Mary Grace