Welcome, Guest. Please Login or Register
Moyamoya.com
 
NEW search box below... Search Moyamoya.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday ListDonate  
 





Page Index Toggle Pages: 1
Send Topic Print
Has anyone noticed??? (Read 2015 times)
Janko
Experienced Poster
***
Offline


Take baby steps...one
step in front of the
other!!

Posts: 209
Kekaha, USA, usa, 326, 333, HI, Hawaii
Gender: female
Has anyone noticed???
Feb 16th, 2006 at 1:18am
 
I know it's a rather dumb question, but....?  Has anyone noticed or observed if they have been in and out of the hospital/clinic more since being diagnosed with Moya Moya?  I've been in the emergency room so often that the emergency room personnel know me by name or if the don't, they ask didn't I see you in here recently? Smiley

It seems that I'm a hypochondriac, I go into see the doctor for every little thing now.  I have a hard time even treating a cold.  My doctor doesn't want to prescribe any medicines that will raise my blood pressure so only thing I take is tylenol. No OTC medications.  I've been really lucky that every time that I have to go in for something I just call my PCP and he will always make a slot for me or take me stand-by.  If I go to the walk-in clinic they will send me straight to the emergency room because they don't know treat this condition.  He has been my PCP for the past 10 - 12 years.  My sister used to be his receptionist/medical assistant before she moved to Maryland.

Has anyone taken anything to relieve cold symptoms?
If so, please let me know...

Thank you,
Jan
Back to top
  

Everything is not just black and white.  Open your eyes, see what the world has to offer....
 
IP Logged
 
Shan
Old-Time Poster
*****
Offline


MM Survivor ~ May 27,
2005

Posts: 849
Honolulu, USA, usa, 376, 346, HI, Hawaii
Gender: female
Re: Has anyone noticed???
Reply #1 - Feb 16th, 2006 at 6:01am
 
Aloha Jan,

Prior to me being properly diagnosed (by my third opinion) I was in and out of the ER.  They always did a CT scan and then sent me home.  I think they began to think that I was a hypocondriac and was having panic attacks.  I believe this was due to their lack of knowlege of MM because come to find out, I was actually having TIA's.  Sad part is that I myself did not know I had MM.  Does the ER know what MM is?  Is this at Wilcox Memorial?

As for colds...thanks to this wonderful site, I found out about Corricidin HBP.  (Thanks Nancy)  I read about it in a previous thread....  It doesn't raise my blood pressure.  You may want to look through old threads (I believe there's one specifically on colds.  If I see it, I'll bump it up for ya'.)

Hope you're feeling better, Jan.  

Take care...

Me Ke Aloha Pumehana,
Shan

p.s.  I'm actually glad that you're getting "special" treatment...in otherwords, sounds like they are being extra cautious with you because of your condition.
Back to top
« Last Edit: Feb 16th, 2006 at 6:03am by Shan »  

"Love, Accept And Respect All Things And All Situations In Life … They Are Especially&&Designed For Your Personal Learning" ~Howard Willis
 
IP Logged
 
Nancy_N.
Old-Time Poster
*****
Offline


My daughter Mandy Has
Moyamoya

Posts: 664
Jasper, USA, usa, 436, 230, GA, Georgia
Gender: female
Re: Has anyone noticed???
Reply #2 - Feb 18th, 2006 at 12:33pm
 
Jan,
            Mandy did take Coricidan HBP and did fine and has just started it now again for allergies she takes the cold and cough one it works for her allergys she sneezes all morning and her nose runs like a spicket and this stops it. To my knowledge this is the only thing that does not restrict the vessels. Hope this helps.
                       Nancy
Back to top
  
 
IP Logged
 
Page Index Toggle Pages: 1
Send Topic Print



Moyamoya.com Forum » Powered by YaBB 2.4!
YaBB © 2000-2009. All Rights Reserved.


©2003-2018 Web Vision Enterprises LLC All Rights Reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.

You may view our privacy policy and financial disclosure statement here





Valid RSS Valid XHTML Valid CSS Powered by Perl Source Forge