Michell,

I have had this test done in Phoenix at BNI and it's just like a CT Scan, except they have an IV going and inject dye at certain points in time.  I heard the same thing that your doctor told you, newer and supposed to be better although mine was used for emergency purposes and was not a follow up test.  I was not under sedation and do not believe it is required.

Hope this helps - will be thinking of you all and hope for the best during Trey's test!

Trina

Thanks guys for your input.  I feel alittle better about it now.  Now I just hope they do it right and have no problems with doing him.

Greg,  Trey has had bilateral surgery.  I don't know the technical name for his surgery, but they placed the temperal artery directly to his brain.  His first angiogram almost 7 months after the surgery was great.  He had better blood supply than they thought he would at that time.  This is just his 2 year check up I guess and instead of doing the angiogram again they want to do this test.  I don't know which one is actually better or if they are about the same.  But I am expecting the doctor to tell us that he still has good blood supply to the brain now almost 2 years post op.  Thank you for letting me know about your experience.  Are you doing okay now?
Michell

Greg,

I am sorry that you have had to go through all that you have had to.  I am glad that you don't have MM and hope that the doctors can offer some real help for what you do have.  I will keep you in my prayers.

To be honest, I don't want MM, but I wish sometimes I could feel what Trey feels like.  He has had MM for more than half of his life, actually almost his entire life.  Seeing that he is 2 1/2 he doesn't tell me what he is feeling or how he is feeling.  Now, you have to understand that when I say these things----Trey is all 2 year old boy with a slight limp and hemaplegia on the left side that happens to have MM.  He doesn't or hasn't let his disease or its affects get him down.  He seems to be all boy, if you didn't know him you would not know that he had ever had any problems.  But I don't know if he hears the blood flowing in his head and because he has had it for so long and it started at such a young age for him he may never know a silent night but may not realize it.  But I don't know if he is having TIA's or headaches or anything.  Just because I said that I don't want to have it doesn't mean that if I could take it away from him to let him have the "normal" life, I would take it from him faster than a second.

I don't feel like I am making sence.  I am sorry.  I hope that you are having more good days than bad.  I pray that you will have no problems before test dates.  Do the doctors know any long term information for you?

I will keep you in my prayers.

Michell