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Emily

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Diagnosed Oct 2005. Direct
bypasses: Nov 05 Apr
06

Posts: 259
Brisbane, Australia
Gender: female

2nd Surgery Date, yay!!
Mar 22^nd, 2006 at 7:13pm

alrighty, i finally have the date for my second surgery...

April 20!

which is still a few weeks away but gives me a bit of time to play before going under the knife again.... apparently i take 3 weeks to prepare for or something (i think they're referring to preparing themselves for 7-8 in my company, geez and here i was thinking i was a model patient!) but at least i get to give myself the clexane injections this time, which is waaay better than sitting around at home all day waiting for someone to come over... and waaay waaay better than sitting in hospital for a few weeks also!

Anyway so woo.. bring it on..

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« Last Edit: Mar 22^nd, 2006 at 7:13pm by Emily »

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kotipup Experienced Poster Offline My daughter, Daphne, has Moyamoya Posts: 247 Landenberg, USA, PA, Pennsylvania Gender:	Re: 2nd Surgery Date, yay!! Reply #1 - Mar 23^rd, 2006 at 8:39pm Emily, I'm glad you've got your second surgery date scheduled. I know you must be so ready to get this all over with! You've got such a great sense of humor/attitude.... I just know you'll do well. Of course you're a model patient Jenny
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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: 2nd Surgery Date, yay!! Reply #2 - Mar 24^th, 2006 at 8:43am Emily - Congrats on your second surgery date! Isn't it amazing...we sit around and say "Yay for Brain Surgery!" - lol - I understand/empathize/know the feeling!!! -Shari
Back to top	A smile is contagious...start an epidemic! Dr. Scott did my surgeries - 12/29/03 and 1/5/04 IP Logged

moody

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In all the thing I lost
I miss my mind the most.

Posts: 207
richmond, USA, VA, Virginia
Gender: female

Re: 2nd Surgery Date, yay!!
Reply #3 - Mar 24^th, 2006 at 2:52pm

Why we all so happy when we have a surgery dated? With my experience the waiting game is so terrify, I can't go to work when I find out I have MM on Jan(doctors house arrest me Sad

), and always live in worry with so many "WHAT IF .....?" question, I too so happy when I got my dated Apr 7, good luck with your surgery and you are in my thought and prayer. Smiley

Kieu

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Yesterday is past, tomorrow is future, today is the gift, that why we call it present.

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Emily

Senior Poster

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Diagnosed Oct 2005. Direct
bypasses: Nov 05 Apr
06

Posts: 259
Brisbane, Australia
Gender: female

Re: 2nd Surgery Date, yay!!
Reply #4 - Mar 24^th, 2006 at 9:25pm

Well I personally am happy because

a) i feel so amazingly fantastic having just one artery working properly... imagine how it's going to be when i have TWO arteries supplying my brain!! woo!!! (and then later on maybe 3, or even.... one day....... 4!!!!)

b) i've been damn near waiting forever (yes is exaggerate) and i really want to get on with stuff.. like ah..... LIFE! maybe get a job, re-instate my travel plans etc...

c) my scar from my last surgery has COMPLETELY dissapeared... and I've met quite a few new people since then and they don't really beleive that i've had hard-core brain surgery - so i need a new scar to prove it to them Wink

;

hehe

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patch

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Posts: 51
NEWCASTLE, Australia, australia, 325, 238, NSW, New_South_Wales
Gender: female

Re: 2nd Surgery Date, yay!!
Reply #5 - Mar 30^th, 2006 at 4:43am

Emily

Glad your date is now confirmed.
How long to they have to put up with you in that Melbourne hospital (Ha Ha) ?

How long does your surgeon wait until removing the stitches ?
(Mine was two weeks, and then another two weeks until I could wet my hair - as my three surgeries were back to back in one hospital stay, I was in prison for 34 days and went 48 days without getting my head wet. I say head, because I had my hair shaved off !)

Will you have access to the net while in hospital?

Are you back in Melbourne? Did you catch any of the Games action ?

A lot of questions !

xx
Helene

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Emily

Senior Poster

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Diagnosed Oct 2005. Direct
bypasses: Nov 05 Apr
06

Posts: 259
Brisbane, Australia
Gender: female

Re: 2nd Surgery Date, yay!!
Reply #6 - Mar 30^th, 2006 at 5:14pm

Hey Helene, no worries about the questions hehe.

Well I go into hospital on the 18th, to go on a heparin drip for 2 days before the op... no idea why as i didn't do this last time, guess my doc just wants to keep a close eye on me beforehand.... Roll Eyes

last time i was operated on the thursday and discharged on the monday, so hopefully it will be the same this time! and i had disolving stitches (no scar at all) so i don't need to wait around for that... and went home with a wicked "NO PRESSURE" patch on my head which got checked weekly (and i think removed after 1 week anyway). and then i washed my hair pretty soon after that - gently... which was exciting after having dreadlocks for so long Wink

hehehe....
i'll be far less excited this time though, the novelty has worn off! haha....
and as for haircuts, last time they only shaved a section 15cm by 2cm long... so hopefully this will be the same, just not sure which direction..
man i dunno how you survived 34 days in hospital.... my longest stay was only 12 days.... then 5, then 5... on the last stay i damn-near discharged myself, i was going nuts! or well past going nuts and busting out seemed the only option! hehe

no i won't have net access in hosp, but i'll get my mum or mate to post how i'm doing.

comm games: yeah my little weightlifting mate won the bronze on the first day of the competition and i went and watched her, so happy! ; Grin

that was heaps fun..
i didn't see any more sports but melbourne ran a cultural festival during the games with FREE live music, dance, arts, circus, etc... performances everyday, all over town... was awesome! acts from all over the world so i had a blast running around town everyday for 2 weeks going nuts... now is the stay-at-home-at-the-beach wind-down... which i'm quite enjoying! hehe... bah for city air! (or lack of)

anyway, hope all's well in your hood

xoxo

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Lore

MM.com Benefactor

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My brother Kevin (Cubbie)
has Moyamoya

Posts: 819
Delaware, USA, usa, 419, 133, OH, Ohio
Gender: female

Re: 2nd Surgery Date, yay!!
Reply #7 - Mar 31^st, 2006 at 1:32pm

Emily,

Great news on getting your second surgery date scheduled. I know you will do well. You have a great attitude and hey, you've "been there done that". It's amazing what blood flow will do for the brain.

I'll be anxious to hear how well you do and what type of hairstyle you end up with this time. Smiley

Best wishes to you.

Hugs, Smiley

Lore

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"What lies behind us and what lies before us are tiny matters compared to what lies within us." - Ralph Waldo Emerson

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Emily

Senior Poster

Offline

Diagnosed Oct 2005. Direct
bypasses: Nov 05 Apr
06

Posts: 259
Brisbane, Australia
Gender: female

Re: 2nd Surgery Date, yay!!
Reply #8 - Mar 31^st, 2006 at 7:42pm

Thanks Lore,

Yeah I'm not worried at all... just looking fwd to how awesome it's going to feel to have even MORE bloodflow!

And yeah, I got a bit carried away with making little dreadies (you can kinda see them in the pic).. but hopefully i've left enough 'room' for surgery, hehe.. Otherwise I guess I'll deal with it... not making dreads over the scar areas anyway.. the whole thought of possible scar shrinkages/stretches with climate changes etc... urhhh sends a bit of a shiver down me!

edit:: typos....... pffft!!

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« Last Edit: Mar 31^st, 2006 at 7:44pm by Emily »

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Lore MM.com Benefactor Offline My brother Kevin (Cubbie) has Moyamoya Posts: 819 Delaware, USA, usa, 419, 133, OH, Ohio Gender:	Re: 2nd Surgery Date, yay!! Reply #9 - Apr 4^th, 2006 at 7:03am Emily, I like your present hairstyle. Looks like your hair has grown substantially since your last surgery and especially with being able to have dreads. That's the nice thing about hair, it grows back. Hugs, Lore
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mg12061 Old-Time Poster Offline Posts: 946 Albany, USA, usa, 492, 84, NY, New_York Gender:	Re: 2nd Surgery Date, yay!! Reply #10 - Apr 4^th, 2006 at 8:50am Emily that's great news!!! Don't ever lose your wonderful attitude and amazing sense of humor,that's what will get you through it. Kathleen's 4 yr anniversary of ehr surgeries is the same week as your surgery.She ahd both sides done in the same week.You will be in our prayers. mary and kathleen
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Emily

Senior Poster

Offline

Diagnosed Oct 2005. Direct
bypasses: Nov 05 Apr
06

Posts: 259
Brisbane, Australia
Gender: female

Re: 2nd Surgery Date, yay!!
Reply #11 - Apr 10^th, 2006 at 7:09am

hehe, thanks mary and kathleen, and woo... only a week!

yeah lore i'm so stoked out how long my hair is! has gone from like 1 inch to 4-5 inches in only 5 months.. and my longest dread is actually 6 inches!! hehe.... i ended up getting carried away and just dreading almost all of it except the 'right' side..... meh... if i have more surgery, it won't be til at least 5-6 months away... if they have to be cut off i'll jsut grow it and dread it again! ----> my attititude there has certainly picked up hasn't it!

cheers for the well wishes everyone, it means a lot

;

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moody Experienced Poster Offline In all the thing I lost I miss my mind the most. Posts: 207 richmond, USA, VA, Virginia Gender:	Re: 2nd Surgery Date, yay!! Reply #12 - Apr 13^th, 2006 at 3:49pm Hi Emily, I'm home, ,I'm doing fine, the doctor and staff is wonderful, my hair looklike a rock star ,I will have it shave all tomorrow, good luck to you on surgery, you're in my thought and prayer kieu
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mg12061 Old-Time Poster Offline Posts: 946 Albany, USA, usa, 492, 84, NY, New_York Gender:	Re: 2nd Surgery Date, yay!! Reply #13 - Apr 17^th, 2006 at 8:18am Emily Are you counting down the hours now???? I know how hard that waiting is and what a feeling of relief and fear as your surgery date grows closer.Please know your in our thoughts and prayers.Keep us posted. mary Grace
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