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Moyamoya.com Forum › Moyamoya Related Topics › Moyamoya Related Information and Support › Lydia has date for surgery

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Lydia has date for surgery (Read 3727 times)

louise_and_Lydia

New Poster

Offline

my daughter Lydia is 1
and diagnosed with MM
2002

Posts: 33
Swansea, United_Kingdom, europe, 150, 229
Gender: female

Lydia has date for surgery
May 18^th, 2006 at 7:48pm

Hi folks,
Have not posted for awhile, been very busy with new job promotion and moving house. I do pop in now and again to check news on this site.

Lydia now has date for surgery, 10th July, we are having a holiday in spain just before to take her minfd off it.

They also dicovered she has a heart murmer and she is due an echo scan prior to surgery.

I know it will be for the best as apart form Lydia major stroke on left side, Angio/mri have shown up multiple silent strokes....Interesting thing tho, is that the MM vessels are really profuse on the left side of brain but are not showing up on the right side of brain, however its the right side that had the major stroke, find that odd!!!!

Anyways, Hospital say its important she has surgery to reduce risk of furthe stroke, wether it will improve her tia s and learning in school, who knows.

Stll cant help feeling nervous, hope it all goes ok. Lydia is my only little girl and my world, so this is such a nightmare for me. Still all on this site are in same boat.

off to bed now, its late in UK nearly 1am!!!! and Im in work at 8 tomorrow. Time to switch off

Night night MM ers xxxxxxxxxxxLou

love and hugs Louise & Lydia

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Annica

Experienced Poster

Offline

My daughter lives with
mm

Posts: 173
Stockholm, Sweden, europe, 317, 154
Gender: female

Re: Lydia has date for surgery
Reply #1 - May 19^th, 2006 at 3:32pm

Hi Louise and Lydia!

How I feel for you!
I know you are scared and nervous for your little girls brainsurgery but actually I haven´t heard of any surgery that went wrong and it IS necessary to have the surgery to prevent future problems from this disease.
My Louise (now 10 years old) had her surgery more than 3 years ago and I still remember the feeling in my heart when I left her to the doctors in the surgeryroom deeply asleep. Like it was yesterday!! It was my worst nightmare ever but everything went well and I am so happy that day is all behind us.
Wise thing to plan a nice vacation right before surgery! And remember that you are probably more scared than she is, it is always worse to be alongside than to be in the center - you are sooo helpless.
Me and Louise will be thinking of you 10th of July and I am sure everythin will be OK.
Take care !

Love,
Annica

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gp New Poster Offline I love YaBB 1G - SP1! Posts: 8 honolulu, USA, HI, Hawaii Gender:	Re: Lydia has date for surgery Reply #2 - May 20^th, 2006 at 6:02am Aloha Louise and Lydia!Our thoughts and prayers are with you..Im sure it will be alright. My brother is also awaiting his surgery. No date yet. Keep us posted how things are going.Aloha gp
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gotchlorine

Old-Time Poster

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Our daughter, Tara, lives
with MM

Posts: 776
San Jose, USA, usa, 24, 158, CA, California
Gender: female

Re: Lydia has date for surgery
Reply #3 - May 21^st, 2006 at 1:43am

Greetings Louise and Lydia,

You'll definitely be in our thoughts and prayers. Speaking from a mom's point of view, surgery days are indescribably long and painful, but it's obviously for a good reason. Your MM family will be with you both in spirit! We're approaching the second anniversary of Tara's surgeries, and it's very joyous for all of us.

Please keep us posted, o.k.?

Big hugs from California,
Jill

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Roz

Junior Poster

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Posts: 77
Gender: female

Re: Lydia has date for surgery
Reply #4 - May 21^st, 2006 at 9:59am

Hi Louise and Lydia,

Just a quick message to say I'll be thinking of you, Lydia and your family on 10th July.

I've just passed 10 years since my second lot of surgery. My TIAs definitely improved afterwards. I no longer have any full blown episodes whereby my whole left or right side of my body would go heavy and numb. I hope the same can be done for Lydia.

Have a lovely holiday in Spain.

Best wishes,

Roz

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louise_and_Lydia New Poster Offline my daughter Lydia is 1 and diagnosed with MM 2002 Posts: 33 Swansea, United_Kingdom, europe, 150, 229 Gender:	Re: Lydia has date for surgery Reply #5 - May 24^th, 2006 at 7:04am Thank you every one for your thoughts. Will post you all after the Op to let you know how Lydia gets on
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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: Lydia has date for surgery Reply #6 - May 24^th, 2006 at 9:15am Louise and Lydia- You will definitely be in my thoughts and prayers when you go through the surgery! Wish I could take another trip over the pond to see you and support you through the surgery but just know that we'll be thinking of you and send our love and hugs! Good luck! -Shari
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AviAmb

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I love YaBB 1G - SP1!

Posts: 11
York, United_Kingdom, europe, 181, 199

Re: Lydia has date for surgery
Reply #7 - May 24^th, 2006 at 5:56pm

Hi ya Louise and Lydia,

Just found this mesage after posting on UK bit. I really do know just how you feel. Amber is my only childs and my whole world too. She came out of the first op at GOSH, on her right side(Stroke took out her right side) jumping out of the cot-she has been great. Everyone was lovely and the scar is very neat. This next op on Friday is on the left side to limit the damage I guess. Very scared this time even though it all went so well the first time!!! Then the long wait to see how well it does. The postings here have helped restore some hope. Will se thinking of you both- Enjoy Spain.

Im taking a guess that the side where there is lots of mm is coping better with the block than the less mm side-pure guess?????

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