Hi Janni,

I was just dx'ed a few weeks ago. Today I have sent my films to Dr Steinburg.

He is the authority in moyamoya and most doctors have little or no experience in mm, I suggest you plan a trip to the USA and see Dr Steinburg.

MM does not go away and it continues to get worse. Those patients that have not had major strokes prior to surgery have the best post surgery results. Patients that have already had problems have mixed results.

It would be counter-productive to risk a dibilitating stroke to motivate you into surgery.

Hey, we just might be surgery roommates!

sorry you have this....but please, do seek treatment.

warm wishes and hugs.....diane : )

LISTEN to Dr. Stienberg...he is the best of the best in my opinion.  MY Doc's here told me everything was fine...go home and come back if needed.  That meant if I have another stroke.  Well thats to late, right?  I just returned from California yesterday, from my 6 month follow up.  I had my right side done on Feb.1, 2006 and left side(which was basically a double STA bypass) on Feb.8,2006.  The blood flow in the arteries was 0 on both sides.  Because there was absolutly no arteries!After the bypass my left right side was 10 % and left was 17%.  Teresa is letting me know my results from the recheck this week.  Dr Stienberg is out of town, however she says everything looks great! If he say's it should be done believe him, had I not listened who knows what would have happened. I was only diagnoised a few years ago.  Most Nuerologists just don't know enough about the disease, but Dr Stienberg does.  Believe what he says.
And by the way...california is beautiful!!!!!!!!