Hi All-
I am curious to the facts and information on MM and being genetic, running in families, or heretitary...what ever the term.  I have MM and am 6 months post my surgeries with Dr. Steinberg.  Does any one have any info on this?  Is it more likely for MM to be sibling and sibling, or parent and child?  Is it normally that one patient is DX'ed and then for the other to be tested for similar symptoms?  Does anyone have more than two MM patients in one family? Thanks for any information.

Hi Cheri,

Although the most recent statistics for a sibling having moya moya is about 10% or less, there is a brother and sister on the board, Michelle and Shane, who both have moya moya. Also, mother and children have reported having moya moya. My brother has moya moya however, I don't and I am older than my brother. I'm not suggesting age really has anything to do with it because it affects infants through adults in their 60's. It is also unknown why MMD shows up in some as an infant and others not until much later in life.

Although not much information exists about moya moya in terms of the possible cause and if it is genetic , most information that is available suggests moya moya may be genetic . I suspect as more moya moya cases are diagnosed, and better technology developed, we will see the true facts about MMD unfold as to whether MMD is genetic or hereditary or both.  I just hope it is in my lifetime.

I hope this is of some value to you.

Lore

Hi Cherri,
    My Mother and I have MM. I was diagnosed first then due to my symptoms, which my mother had the same ones she was then diagnosed. I've had surgery she has not. Both my children were checked and do not have it.
Our neurologist says" in our case it is Genetics.
                      Lena
   I was 33 and Mom 53  When we  were diag.