mg12061
|
Hello, and welcome.I'm sorry you niece has to deal with this disease but this is a great place to find support and information.My daughter was diagnosed at 5 yrs old,she had surgeries with Dr.Scott.She's now 9 yrs old and doing great, even though she was very unstable at the time of her surgeries,and suffered many strokes.I tell you this to give you confidence in the surgeries.As others have said it can take longer for some to get the maximum growth of the new vessels.My daughter also has Down syndrome, this can make for very small vessles also(we had a really tough time with IV's).I'm sure your very diligent about the hydration,we get a little obsessive about it too,Kathleen wasn't much of a drinker especially water.Also Hyperventilation which can come from overexertion, crying and laughing.Have you asked Dr. Scott aobut this new development?He's such a great guy about answering any questions.It may just put your mind at ease or he can bump up the yearly check for you.Just a thought.Please keep us posted,and if you have any more questions just ask away.Many prayers for your niece.She's lucky to have such a caring aunt. Mary Grace
|