My daughter,Paige,is scheduled for direct bypass next week,Sept.7.The anxiety and stress is already setting in for her father and myself.And I know that it will only get worse for us as the date gets closer.I am really dreading the day of surgery and the wait for her to come out of surgery.I have a good feeling about it but as most of you know,a good feeling doesn't always keep you from being scared.Please keep Paige in your prayers as she gets ready for this and us that we will stay strong for her.Thank you all.I will post an update as soon as possible after her surgery.

Jennifer

Dr.Rick Boop at LeBonheur Children's Hospital in Memphis,TN will be doing the surgery.Paige was already a patient at St.Jude Children's Hospital,where Dr.Boop also works.After,her insurance denied her having surgery by Dr.Steinberg,and me refusing to let a doctor at Vanderbilt in Nashville do the surgery because of how he treated us(he told me that it was my fault she had MM),her doctor at St.Jude set up an app.with Dr.Boop there.It was such a hassle to find someone willing to do the surgery that her insurance would cover but I kept fighting because I refused to let a dr who I wasn't comfortable with do brain surgery on my daughter.Now I am completely comfortable with Dr.Boop and my decision.

Jennifer,
                Our thoughts and prayers are with Paige and your family. You tried your best and thats all you can do, I'm sure she'll do fine and yes I feel your pain, anxiety, worry everything. My daughter had surgery in 2003 at Stanford she is 20. How old is Paige? You'll be surprised at how strong the kids are and how they bounce back. Hang in there we're here for ya!
                           Nancy ;

Hi Jennifer Paige will be in my Prayers also as well as your family......I can not even imagine what parents go thru since I am an adult w/mm Keep us posted as to how she is doing.....I had my 1st Major Stroke in Nov. 1997 but wasn't DXed till my first surgery on New Years Eve.1998-99 and at that time there was only 350 people in the United States DXed with it,,,,,And no information about it, BUT Thanks to DJ that has ALL Changed....... ;Hang in there,,,,,,I'm sure she will do fine,,,,,

Hi Jennifer,

I have been thinking about you and Paige. I'm glad to hear Paige is finally having surgery. It is only natural for you and your husband to feel the anxiety. This is your precious baby. It's like Nancy said, these children are real troopers and it is amazing to me how they bounce back. Stay strong and know that you are all in our thoughts and prayers.

Keep us posted.

Hugs,

Lore

We want to thank everyone for their words of encouragement and your prayers.Finding this site has been a huge blessing for us.At first,I was terrified when I read about MM(this was a few months before Paige was diagnosed,the doctors had only mentioned MM as a possibility),but once I began reading comments from everyone,I had hope that she would be OK.I was in contact with some of you while we were trying to get Paige to Stanford and I am sorry I lost contact.I am confident that Paige will be just fine after the surgery.She is 4 years old(will be 5 in March) and it is true that kids are strong and bounce back so much better than we do as adults.She is my own little hero.
  Jenny,I want you to know that we will be thinking of little Daphne.What a fighter she is!!I definitely know how hard the chemo is.It was so hard for us to watch Paige go through her chemo.She was supposed to have it for a year but it had to be stopped after 8 weeks.That's when we sent her to St.Jude Children's Hospital for radiation.Her tumor is still there but is finally stabile and thankfully,it never affected her vision.It was a miracle because the optic glioma was the size of a large marble.Like Daphne's,Paige's glioma also grew fast.We will keep her in our thoughts and prayers as she goes through chemo and your family also.Please keep me updated on her condition.
Thank you all again so much for your thoughts and prayers.I will post an update as soon as I can after surgery.
Jennifer &family

Jennifer,

I know it's been a long few months leading up to this week, so I'm glad Paige's surgery date is close.  You'll definitely have your MM family with you in spirit, and many thoughts and prayers as she goes through surgery and the recovery period.  Please keep us posted as you can, o.k.?

, Jill