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Moyamoya.com Forum › Moyamoya Related Topics › Moyamoya Related Information and Support › Paige's webpage

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Paige's webpage (Read 2567 times)

jnokes New Poster Offline Daughter,Paige, has NF1 and Moya Moya Posts: 43 Smithville, USA, TN, Tennessee Gender:	Paige's webpage Sep 17^th, 2006 at 11:35pm I wanted to let everyone know that I have created a webpage for my daughter Paige through Caring Bridge.It gives a history of her medical conditions,a journal through her surgery,and pictures.The address is www.caringbridge.org/visit/paigenokes . Jennifer
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Islandentity

Experienced Poster

Offline

My son Robert has MM

Posts: 151
Drummond Island, USA, usa, 387, 60, MI, Michigan
Gender: male

Re: Paige's webpage
Reply #1 - Sep 18^th, 2006 at 1:18am

Jennifer,
Once again the people on this site have provided me just what I was looking for ...ty what a wonderful site I have started one for Robert were i will beable to post to my large family as we progress through this, It will save me the embarassment of forgetting to call someone again(in all the confusion i forgot to call my former sister In-law who is still like a sister to me and let her know about Robert) Hope all is well with you

Mike

BEER Is proof that God Loves us, and wants us to be happy - Benjamin Franklin

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kotipup Experienced Poster Offline My daughter, Daphne, has Moyamoya Posts: 247 Landenberg, USA, PA, Pennsylvania Gender:	Re: Paige's webpage Reply #2 - Sep 18^th, 2006 at 5:35pm I visited Paige's site this morning. What a beautiful little girl! You would never guess, by looking at her, all that she's been through. Amazing how resiliant children can be. I hope she is still doing well at home after her surgery Jenny
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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: Paige's webpage Reply #3 - Sep 19^th, 2006 at 9:20am I visited both Paige's and Robert's web sites - what beautiful children!!! Great job!
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jnokes

New Poster

Offline

Daughter,Paige, has NF1
and Moya Moya

Posts: 43
Smithville, USA, TN, Tennessee
Gender: female

Re: Paige's webpage
Reply #4 - Sep 19^th, 2006 at 11:04pm

Thank you to everyone.I found out about Caring Bridge while Paige was going through radiation at St.Jude Children's Hospital in Memphis,TN but didn't actually set her site up until early this year after she was diagnosed with MM.I have found that it has been very useful in keeping everyone updated on her condition.I was so glad to hear that through this I was able to help Mike(Robert's father).I know it's not alot,but I have found as a parent of a kid with MM,every little bit helps and lets us concentrate more on getting our children through this.Hopefully,I can help others if not but just a little,as so many of you have already helped me with your support,encouraging words,and prayers.

Thank you & God Bless
Jennifer

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