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mg12061

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Albany, USA, usa, 492, 84, NY, New_York
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Re: Allergies and MM
Sep 26^th, 2006 at 7:34pm

Michell, I'm sorry but I don't have any owrds of wisdom about the allergies except that maybe you could e-mail Dr.Scott about it asking if there were any precautions he thinks you should take as far as allergy meds.That's probably the route I'de take.he's really great about answering e-mails,and it's easier than a phone call.
Wow it sounds like Trey is doing great.I can't believe he's 3 yrs old!!! I'm glad he likes preschool.that's great that the constraint therapy went well for him.I'm considering talking with the rehab hospital that Kathleen was in after her strokes about doing this next summer(there's really no time when schools n session).This summer we did a lot of work on bilateral tasks and one big accomplishment was, that now Kathleen can put her own shirt on!! We tried it last year and she just wasn't ready for this task.It's not that easy with just one arm.She's using it a bit more spontaniously(as a helper).Sounds like Trey is keeping you guys busy,but I'm sure like us, you wouldn't ahve it any other way.good luck with those "thrilling threes" !Thanks for the update,keep in touch!
Mary Grace

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Islandentity Experienced Poster Offline My son Robert has MM Posts: 151 Drummond Island, USA, usa, 387, 60, MI, Michigan Gender:	Re: Allergies and MM Reply #1 - Sep 27^th, 2006 at 8:49am Michell, Robert is pre-surgery, He too has spring and fall allergeis that seem to trigger his TIA's, He takes zrtec for his allergies, however robert is only on a baby asprin and co-q 10 for his symtoms I would definetly have a doctor reveiw everything and then make a recommendation good luck, best wishes Mike
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Sara Experienced Poster Offline I am 15 years post-op and loving life! Posts: 208 Houston, USA, usa, 291, 279, TX, Texas Gender:	Re: Allergies and MM Reply #2 - Oct 10^th, 2006 at 3:45pm I didn't realize we aren't supposed to take Benadryl? Why is that? Does anyone know? I knew not to take vcasoconstrictors like Sudafed but didn't know aout Benadryl. They gave it to me through an I.V. once at the hospital?? Uh Oh!! Sara
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Sara Experienced Poster Offline I am 15 years post-op and loving life! Posts: 208 Houston, USA, usa, 291, 279, TX, Texas Gender:	Re: Allergies and MM Reply #3 - Oct 10^th, 2006 at 5:47pm Good to know. I can't believe the things I have been doing that I had no idea were bad... I am glad to know now!! Thanks! Sara
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Islandentity Experienced Poster Offline My son Robert has MM Posts: 151 Drummond Island, USA, usa, 387, 60, MI, Michigan Gender:	Re: Allergies and MM Reply #4 - Oct 11^th, 2006 at 9:24am as far as i have been taught, and been told recently, cold and cough meds are no good but benadrly is not a vasoconstrictor its a antihistamine whgich is fine for most MM patients, robert had a cold last week and dr. said bendraly to help post nasal drip but not cough med. just my input
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STrantas

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Philadelphia, USA, usa, 490, 122, PA, Pennsylvania
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Re: Allergies and MM
Reply #5 - Oct 11^th, 2006 at 9:24am

I'm not sure if the benadryl theory is true. When I went for my one year angio, I spiked a fever and they dind't know what caused it - as a precaution, they (per Dr. Scott) gave me benadryl thinking I may have had an allergic reaction to the dye they use in the angio. I would double check with a pharmacist or a doctor about Benadryl.

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A smile is contagious...start an epidemic!
Dr. Scott did my surgeries - 12/29/03 and 1/5/04

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mg12061

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Albany, USA, usa, 492, 84, NY, New_York
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Re: Allergies and MM
Reply #6 - Oct 11^th, 2006 at 9:45am

Shari,I'm with you I'm not so sure about the Benadryl either.The reason being that under the care of Dr. SCott Kathleen was given benadryl aslo.It was after her first surgery she was having what looked like seizures (later we ralised she was having a seriouse stroke), but they gave her Phenabarb for the seizures and she ahd an alergic, reaction so they then gave her Benadryl to stop it.I can't imagine that they would have given it to her if it was dangerous for her.
Mary and Kathleen

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twinsmom

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16 year old twins with
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hollis, USA, NH, New_Hampshire
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Re: Allergies and MM
Reply #7 - Oct 21^st, 2006 at 8:27am

Hi, there! Smiley

Just wanted to put in my Smiley

on the benadryl thing.

My daughter was also given benadryl at the hospital (while under the care of Dr. Scott) - because believe it or not, she was allergic to the bed sheets!! Smiley

Apparently the detergent the hospital used on their laundry didn't agree with Kate, and minutes after getting on the bed she developed a full body rash!! As if there wasn't already enough to worry about!! Anyway, the hospital gave her benadryl for the rash, and we brought in our own linens - and all was well.

I had heard the same about cold meds - no pseudoephedrine, no ibuprofen, but benadryl and antihistamines are ok. Unfortunately, for both of my girls, antihistamines tend to make their BP's go too high, so for us, those are out too. My girls have that post nasal drip cough all year long - so if anyone has any good tips about something else that works for that -

please!!!

let me know!!

Anyway, good luck Michell. Glad to hear that Trey's doing well!

Hugs, Smiley

Kristen

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"Come to the edge." "We can't. We're afraid." "Come to the edge." "We can't. We will fall!" "Come to the edge." And they came. And he pushed them. And they flew. by Guillaume Apollinaire

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Nancy_N.

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My daughter Mandy Has
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Jasper, USA, usa, 436, 230, GA, Georgia
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Re: Allergies and MM
Reply #8 - Oct 24^th, 2006 at 11:25am

Thats interesting because I was under the impression that you could ONLY use coriciden(sp) Hpb (High Blood Pressure) I haven't given Mandy anything but since her strokes because she has the allergy thing going on she is actually taking it right now. Wow I didn't know about benadryl maybe Jill can ask Theresa for another opinion on it, Mandy has a rash once real fine all over her belly and just suffered through the itching because I couldn't give her anything....thats interesting. Hey Jill can help us out? Thanks!
Nancy

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gotchlorine Old-Time Poster Offline Our daughter, Tara, lives with MM Posts: 776 San Jose, USA, usa, 24, 158, CA, California Gender:	Re: Allergies and MM Reply #9 - Oct 24^th, 2006 at 4:50pm O.K., I checked with Teresa, who said that it's fine for MM patients to take Benadryl. Hope that helps! Jill
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Nancy_N. Old-Time Poster Offline My daughter Mandy Has Moyamoya Posts: 664 Jasper, USA, usa, 436, 230, GA, Georgia Gender:	Re: Allergies and MM Reply #10 - Oct 30^th, 2006 at 12:38pm Thanks Jill...yes it does help and I am floored I didn't realize you could take it ........ good to know. Thanks again and to Teresa. Nancy
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STrantas

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MoyaMoya Survivor Since
2003

Posts: 1154
Philadelphia, USA, usa, 490, 122, PA, Pennsylvania
Gender: female

Re: Allergies and MM
Reply #11 - Oct 31^st, 2006 at 9:57am

Nancy_N. wrote on Oct 24^th, 2006 at 11:25am:

Thats interesting because I was under the impression that you could ONLY use coriciden(sp) Hpb (High Blood Pressure)

I heard the same thing...because Coriciden Hpb doesn't have the psudoepinephrine (I think thats what it was).

I usually stick with straight Tylenol...just my Smiley

.

-Shari

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A smile is contagious...start an epidemic!
Dr. Scott did my surgeries - 12/29/03 and 1/5/04

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