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gotchlorine

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Our daughter, Tara, lives
with MM

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Moyamoya on ABC - Coming Soon!
Jan 6^th, 2007 at 1:14pm

Just wanted to let everyone know . . .

This Wednesday, January 10th, ABC Primetime - Medical Mysteries will be airing a story on Moyamoya. It's scheduled for the 10:00 pm hour, but you might want to check your local listing to confirm the time.

The crew that came to Stanford for the filming was terrific - professional and VERY interested in learning all they could about Moyamoya. They followed one of our recent surgery patients from start to finish. I haven't seen the show yet, but hopefully it's good!

Happy New Year!

Smiley

Jill

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« Last Edit: Jan 6^th, 2007 at 2:18pm by gotchlorine »

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Lore

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My brother Kevin (Cubbie)
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Re: Moyamoya on ABC - Coming Soon!
Reply #1 - Jan 6^th, 2007 at 2:37pm

Hi Jill,

F A B U L O U S!!!! Great News!!

Thanks so much for letting us know about the ABC Primetime - Medical Mysteries airing of MoyaMoya this Wednesday. Always glad to hear when MoyaMoya awareness is being brought to the forefront and especially on a prime station and prime airtime.

Happy New Year to you Campbell and Tara.

Hugs,

Lore

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"What lies behind us and what lies before us are tiny matters compared to what lies within us." - Ralph Waldo Emerson

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Seachelles Old-Time Poster Offline God never gives us more than we can handle. Posts: 681 Fredericksburg, USA, usa, 474, 157, VA, Virginia Gender:	Re: Moyamoya on ABC - Coming Soon! Reply #2 - Jan 6^th, 2007 at 5:51pm Jill, This is absolutely GREAT news!!!! I cannot wait to see it. When I get home (in Richmond now), I will make sure to look it up so I can TIVO it also. I will definitely stay up to watch this. Thanks for keeping us in the loop!!! Michelle
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ladybugz

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Love one another

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Re: Moyamoya on ABC - Coming Soon!
Reply #3 - Jan 6^th, 2007 at 11:23pm

that's awesome. i don't think i have cable, though. We'll see if that's offered on a non-cable channel. I think they should put moyamoya on one of those shows such as Grey's Anatomy, House MD, or Scrubs or whatever. They always choose the most exotic diseases. MM is pretty weird and it would be another way to get it out there...

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jnokes

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Daughter,Paige, has NF1
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Smithville, USA, TN, Tennessee
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Re: Moyamoya on ABC - Coming Soon!
Reply #4 - Jan 6^th, 2007 at 11:57pm

This is wonderful news.Thank you,Jill,for letting us know.I will have to watch this and let all of my family and friends know so they can watch.It is so hard for some to understand what MM is exactly even though I have tried to explain numerous times.So hopefully this will help them understand more.Thank you again.

Jennifer(Paige's mom)

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tiomasai Experienced Poster Offline Arriba Arriba! Posts: 246 Queens, NY, Gender:	Re: Moyamoya on ABC - Coming Soon! Reply #5 - Jan 7^th, 2007 at 9:02am Hey Jill, great news! Hey Michelle, I think ladybugz is on to something. Can you imagine...we could be extras on Grey's Anatomy as Moya Moya patients being taken care of by McDreamy. Oh wait, we already had a McDreamy take care of us. Trina
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James New Poster Offline Posts: 28 Gender:	Re: Moyamoya on ABC - Coming Soon! Reply #6 - Jan 7^th, 2007 at 10:52pm Jill, They need to do a story about you. You were our Angel almost a year ago. I cannot wait to see the story. Thanks for the info. Jim & Kathie
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firefli66 New Poster Offline Posts: 19 Burlington, USA, usa, 360, 110, WI, Wisconsin Gender:	Re: Moyamoya on ABC - Coming Soon! Reply #7 - Jan 8^th, 2007 at 1:41pm Hello everyone, Can you help me I am trying to find out when this is going to be aired in WI and for the life of me I can't find it. I have checked ABC Prime time and they have other topics on Medical Mysteries. Is any one else having this problem? Please help. Jeana Thanks Jill for the info.
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ntrlpwr Junior Poster Offline have faith, the Lord is my savior dx 2006 Posts: 62 Pearl City, USA, usa, HI, Hawaii Gender:	Re: Moyamoya on ABC - Coming Soon! Reply #8 - Jan 8^th, 2007 at 2:33pm yes thanks jill for the heads up....the story came out in our paper yesterday in hawaii because the husband is from hawaii and is now living here. cool now more people would be aware and know the signs and symptoms. mucho alohaz brandie
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gotchlorine

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Our daughter, Tara, lives
with MM

Posts: 776
San Jose, USA, usa, 24, 158, CA, California
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Re: Moyamoya on ABC - Coming Soon!
Reply #9 - Jan 8^th, 2007 at 6:10pm

Hi again,

I've checked with the media relations person here at Stanford, and the show is still "on" for Wednesday, 1/10, at 10:00 pm. Our segment is the "you be the doctor" one, so there's nothing that mentions moyamoya at this point. Anyway, here's the link to view the promo:

http://abcnews.go.com/Primetime/

Hope this helps . . . happy watching!

Smiley

Jill

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ladybugz Experienced Poster Offline Love one another Posts: 101 USA, usa, WA, Washington Gender:	Re: Moyamoya on ABC - Coming Soon! Reply #10 - Jan 8^th, 2007 at 7:15pm how long and when is the "you be the doctor" segment?
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ntrlpwr Junior Poster Offline have faith, the Lord is my savior dx 2006 Posts: 62 Pearl City, USA, usa, HI, Hawaii Gender:	Re: Moyamoya on ABC - Coming Soon! Reply #11 - Jan 8^th, 2007 at 10:18pm here's the news paper write up about the couple featured that was printed in yesterday's hawaii paper.... http://the.honoluluadvertiser.com/article/2007/Jan/07/il/FP701070335.html
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MrsDeej YaBB Administrator Offline My life is what I make it....and it's beautiful! Posts: 126 Wichita, KS Gender:	Re: Moyamoya on ABC - Coming Soon! Reply #12 - Jan 8^th, 2007 at 10:44pm Thanks so much for the link. My mother is in Hawaii as we speak, I'm gonna see if she can get a copy of the original and bring it home for me!! Thanks again, Steph
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ntrlpwr Junior Poster Offline have faith, the Lord is my savior dx 2006 Posts: 62 Pearl City, USA, usa, HI, Hawaii Gender:	Re: Moyamoya on ABC - Coming Soon! Reply #13 - Jan 9^th, 2007 at 3:40pm steph, wow visiting us, such a pleasure, too bad the whether wasn't any better. it's been rainy and cold, hehe like low 70s.
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STrantas

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MoyaMoya Survivor Since
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Re: Moyamoya on ABC - Coming Soon!
Reply #14 - Jan 10^th, 2007 at 8:54am

ladybugz wrote on Jan 8^th, 2007 at 7:15pm:

how long and when is the "you be the doctor" segment?

The "you be the doctor" segment goes on throughout the show - at different intervals they tell you about a person, what they experienced and then they give you 3 choices. Later in the show, they tell you more and give you another 3 choices...I believe the last part of the show (I normally fall asleep before then, lol!) is the reveal...they tell you what that person actually has been diagnosed with. I set my DVR to record it if I fall asleep!

-Shari

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A smile is contagious...start an epidemic!
Dr. Scott did my surgeries - 12/29/03 and 1/5/04

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suzQ New Poster Offline sister to the sister: killagrrrl Posts: 3 astoria, USA, NY, New_York Gender:	Re: Moyamoya on ABC - Coming Soon! Reply #15 - Jan 10^th, 2007 at 1:32pm This is incredibly timely - My dear friend went into a coma on new years eve. (I have posted more on the: financial for families topic) I sent the info on the ABC show to our support list.... sigh what can you tell me about coming out of the coma? what can you tell me about financial resources for families?
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