I have read that involuntary movement can be one of the symptoms of MMD.  I have involuntary muscle contractions bilaterally (pre and post-op), but only unilateral involvement of the vasculature.
Does anyone else suffer from involuntary movements and if so, what kind of movement (spasms, jerking, tremors, etc.) and what have your docs said about this?

Hello,
Yes, I have involuntary movements on my right side.  I thought it was my a previous work-related injury.  My right arm jerks continually.  Sometimes (most of the time), the spasms go all the way to my right ankle.   BTW, I am 9-months post-op!  I hadn't read that involuntary movements could be a symptom of MMD.  I always thought it was because of tendonitis.

Thanks Steph and Lsuvia for your replies.
This is where I read about involuntary movement being a symptom of MMD.
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This is what it said:

Children may have hemiparesis, monoparesis, sensory impairment, involuntary movements, headaches, dizziness, or seizures. Mental retardation or persistent neurologic deficits may be present.
Adults may have symptoms and signs similar to those in children, but intraventricular, subarachnoid, or intracerebral hemorrhage of sudden onset is more common in adults.

My movement is in my limbs.  For me it's a very quick muscle contraction and then a release (kind of a jerk I guess).  I generally only notice it when I am still (laying down, reading, sitting at computer).  I never really noticed if it happens more when I am worn out.  I'll try to pay more attention to that. 
They looked for focal seizures with an EEG but didn't find any.  As far as I know, though, that only means I wasn't having a seizure when they were doing the test. 
I have never had a stroke (lots of TIAs), but my blood flow was pretty severly diminished and I am only 2 months post-op so it's entirely possible that I just don't have enough revascularization yet to make a difference.
The reason it really concerned me was that it is happening on both sides although my occlussion was only on the left and they said I don't show any involvement on the right.  I think because I went through so many doctors and tests and possible diagnosis (MS, Parkinsons, etc.) and just trying to convince someone that something really was wrong with me, I'm not that confident that something wasn't missed.  Dr. S did my surgery and was amazing.  Unfortunatley, I live in Illinois and had a lousy experience with my doctors here so when something comes up, I don't really have anywhere to turn.
Thanks for your input.  It's good to know I'm not alone!

Tuknits,
The jerks are exactly what I experienced.  My husband and I would sit and watch my fingers go up and down.  How strange our minds are.  It seems that even if your eeg came up clean they should try a dose of anti-seizures to see if it helps. I would insist on it.  Blame it on being scared that you may have a full blown seizure while driving or something.  If the meds don't help...then you know! Hope this helps.  You are not alone...we are here for ya!
Steph

P.S. I love my new med for it.  I am on Zonegran/m (can't remember how to spell it!) and have very few side effects and it supposedly helps w/my headaches ...ummmmm??

Well, instead of hearing from different people w/MMD and have involuntary movements/spasms (worry about/don't worry etc).  I called Teresa @ Stanford.  She recommended that I talk to my doctor and get checked out for seizures or tremors.  I should be able to sked an appt next week.  I'll keep you posted. 
Lee

Thanks all for your input.

I didn't have the greatest experience with my local neuros.  After my EEG didn't show signs of seizures (prior to MMD dx), one said it's probably psychological (insert four letter words here)! 
When I go back to Stanford for a follow up, I am going to see a neuro there and see what they have to say.  It will be a few more months before I go, but I'll keep you posted with the results.

Tracey

Sorry to throw a wrench in the "all female" and "right side" theory  but I also had involuntary movements in my legs.

I originally described them as "tremors" on the Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or , but the more I hear about Restless Leg Syndrome, the more I believe my involuntary movements are exactly the same as those associated with RLS.

Of course, it's only my speculation.  I haven't been seen by a doctor about them and for the most part they went away after my first surgery.  I still occasionally experience the movements but not nearly to the extent as pre surgery.

Sorry to muddy the waters!  lol

DJ

Hey there!
Well, I tried the Keppra to control the involuntary movements.  I did not like Keppra!  It had me depressed & rage like you wouldn't believe!  I'm on Neurontin (anti-convultant).  It makes me dizzy about 3 hrs after taking it then double vision...no, I'm not having fun.
take care!
lee