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Moyamoya.com Forum › Moyamoya Related Topics › Moyamoya Related Information and Support › no bone or plate in skull after surgery!!

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no bone or plate in skull after surgery!! (Read 4034 times)

charl Junior Poster Offline Mother of a 18 year old with MoyaMoya! Posts: 58 potsdam, USA, usa, 473, 66, NY, New_York Gender:	no bone or plate in skull after surgery!! Mar 24^th, 2007 at 9:16pm My sister had the bone removed after surgery do to an infection. does anyone have any info on wether this is safe and/or she should have reconstructive surgery? any knowledge you have will be of much help! thank, charl
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moody Experienced Poster Offline In all the thing I lost I miss my mind the most. Posts: 207 richmond, USA, VA, Virginia Gender:	Re: no bone or plate in skull after surgery!! Reply #1 - Mar 28^th, 2007 at 10:38am What kind of surgery did she has, my head have 2 bur hole about 2inches diameter each, and that bone will not put back, that hole is for the by pass blood velse loop inside to feed my brain. And those area is very sensetive,( I already find out ). Hope it help. Take care Kieu
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charl

Junior Poster

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Mother of a 18 year old
with MoyaMoya!

Posts: 58
potsdam, USA, usa, 473, 66, NY, New_York
Gender: female

Re: no bone or plate in skull after surgery!!
Reply #2 - Apr 1^st, 2007 at 12:02pm

I am sorry she had indirect revascularization on the left side. The bone they removed was the bone window where they connected the temporal artery to the brain. It is a 3'by3' square that now sinks in on her skull. I can see from the responses she is the only one this has happened to. so opinions would also be great!! Undecided

thanks, charl

my now almost 19 year old daughter/sister have moyamoya

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Becky

Old-Time Poster

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Stroke10/03, Diagnosed6/04,
Unilateral Surgery9/04

Posts: 532
Minneapolis, USA, usa, 303, 84, MN, Minnesota
Gender: female

Re: no bone or plate in skull after surgery!!
Reply #3 - Apr 3^rd, 2007 at 7:03pm

I have one 2 inch round missing skull peice. I had an STA-MCA bypass and the musscel on the brain thing. They were able to use the same hole. It will be scencitive and should be. I just can't do any sports without a helmet that I feel could cause injury to my "soft spot". My sugery was almost three years now and I still have sencitivity problems.
I hope this helps.
Becky

What doesn't kill us, makes us stronger. And sometimes leaves a cool looking scar. STA-MCA bypass and EMS Surgeries done at same time at the Mayo clinic

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moody

Experienced Poster

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In all the thing I lost
I miss my mind the most.

Posts: 207
richmond, USA, VA, Virginia
Gender: female

Re: no bone or plate in skull after surgery!!
Reply #4 - Apr 6^th, 2007 at 10:20am

I just be very careful about it, my 2 hole is in both side of my head slightly above the ears, the bypass blood velse just lay beneath of skin of infront both ears, so my neurosurgeon told me I can't sleep on either side of my head( it is hard since I'm side sleeper) and no tight hat or banda either(the rest of my life), he just doesn't want me to crust those blood velse Smiley

. If you have hole on both side, put your finger on one side, tap finger on the other side you will feel it popping Undecided

(it very entertaining) Roll Eyes

.
It just a small price to pay to be alive Cheesy

Kieu

Yesterday is past, tomorrow is future, today is the gift, that why we call it present.

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radioBT

New Poster

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No alarms and no surprises

Posts: 5
Taipei, Taiwan, asia, 405, 271
Gender: male

Re: no bone or plate in skull after surgery!!
Reply #5 - Apr 7^th, 2007 at 10:55am

moody wrote on Apr 6^th, 2007 at 10:20am:

so my neurosurgeon told me I can't sleep on either side of my head( it is hard since I'm side sleeper) and no tight hat or banda either(the rest of my life)

I have a question about not being able to sleeping on our operated side(s). Did your neurosurgeon mean we cannot (or better not) sleep on our sides for the rest of our lives??

Actually my neurosurgeon did not tell or warn me about anything like this. And then when it had been four months post op I started to sometimes use my operated side to sleep (but just for a short period everytime), and that was not long before the aching and stressful feelings started to bother me... I've always been wondering if they have anything to do with each other... Smiley

My neurosurgeon tells me so little about everything... Cry

Ben

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Becky Old-Time Poster Offline Stroke10/03, Diagnosed6/04, Unilateral Surgery9/04 Posts: 532 Minneapolis, USA, usa, 303, 84, MN, Minnesota Gender:	Re: no bone or plate in skull after surgery!! Reply #6 - Apr 10^th, 2007 at 7:13pm My nero didn't say anything eather. He just said if it bothers me then don't sleep on that side. I don't know if it would be the same if I had a surgey on both sides. I say if it bothers you when you do it Don't Do it! But always ask you nerologest first. Becky
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moody

Experienced Poster

Offline

In all the thing I lost
I miss my mind the most.

Posts: 207
richmond, USA, VA, Virginia
Gender: female

Re: no bone or plate in skull after surgery!!
Reply #7 - Apr 12^th, 2007 at 1:54pm

Yes, my neurosurgeon told me very clearly that don't sleep on either side of my head or wear any tight hats or banda the rest of my life, he even told me that get soft pillows to lay on just incase Undecided

and he said I will know it if I accident lay on it. (couple time I lay on while I sleep I did get stroke like symtom on the other side on my arm & leg)

Yesterday is past, tomorrow is future, today is the gift, that why we call it present.

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