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911-TIAS CAUSED BY DEFICIT TESTING??? (Read 2825 times)
charl
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Mother of a 18 year old
with MoyaMoya!

Posts: 58
potsdam, USA, usa, 473, 66, NY, New_York
Gender: female
911-TIAS CAUSED BY DEFICIT TESTING???
Apr 1st, 2007 at 12:25pm
 
tHIS IS MOLLY'S MOM,
molly has been having testing for learning deficits in school due to memory loss. The first test visual-spatal, caused a headache and made her lite headed nausious and have tunnel vision for a while. The second test was on visual memory it caused severe head pain and stroke symptoms. we were sent from school by ambulance to the ER. I was told there was no bleeding today but they do see a new stroke since her last MRA. we are almost 1 year post surgery. Waiting to here from DR. Scott all so far is double her asprin and he wants to see her. If anyone has any knowledge experience or opinion , please respond i am in a panic! she has been ill since the TIA extremely exhausted and physically body sore. Please help!
Thank you,
charl(molly's Mom)
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my now almost 19 year old daughter/sister have moyamoya
 
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pattil647
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Mom of Moyamoya Survivor

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Langhorne, USA, usa, 484, 119, PA, Pennsylvania
Gender: female
Re: 911-TIAS CAUSED BY DEFICIT TESTING???
Reply #1 - Apr 3rd, 2007 at 5:15pm
 
Dear Molly's Mom,  I am so sorry to hear about Molly.  I cannot offer you any advice.  All I can do is offer you sympathy, tell you that you are not alone, and pray for you.  God Bless You!
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Becky
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Stroke10/03, Diagnosed6/04,
Unilateral Surgery9/04

Posts: 532
Minneapolis, USA, usa, 303, 84, MN, Minnesota
Gender: female
Re: 911-TIAS CAUSED BY DEFICIT TESTING???
Reply #2 - Apr 3rd, 2007 at 7:05pm
 
I am so sorry to hear about Molly.  I cannot offer you any help.   I can do is pray for you. I hope you can find an answer.  God Bless You, and Molly!
Becky
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What doesn't kill us, makes us stronger. And sometimes leaves a cool looking scar.     STA-MCA bypass and EMS Surgeries done at same time at the Mayo clinic
 
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megans_parents
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stuarts draft, USA, usa, 465, 155, VA, Virginia
Gender: female
Re: 911-TIAS CAUSED BY DEFICIT TESTING???
Reply #3 - Apr 19th, 2007 at 1:32pm
 
Our daughter had her third major stroke on the drive to boston for a year post-op angiogram. They doubled the asparin also and found that the blood vessels from the side have grown well, but nothing "sprouted" to the back. To make a long story short they then performed a surgery to the back of the brain. That was about a year ago and she is doing well. At the time Dr. Scott said she is only the third patient to have this surgery.  I am saddened to hear others having this "setback" we just had an MRI about 2 months ago and the vessels in the back did good.  Dr. Scott did mention on some patients they could do a 4th surgery to the other side back of the brain, but it was not worth the risk for us because the stroke damaged so much of the back on the right side.  I understand what you are going through and it is very scary and lonely. The surgery went extremely well and she recovered fast. Dr. Scott will make it a priority to find out. You are in good hands. Please call or email me and I can discuss in further detail if you would like.

            Megans Daddy
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The smarter I become, the dumber I know I am.
 
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charl
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Mother of a 18 year old
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potsdam, USA, usa, 473, 66, NY, New_York
Gender: female
Re: 911-TIAS CAUSED BY DEFICIT TESTING???
Reply #4 - Apr 22nd, 2007 at 2:31pm
 
Thank you so much for sharing this with us. I hope your baby is ok. I am glad to hear she did alright. We are waiting to hear from dr. Scott now our er took its time getting him molly's MRA!! Did your daughter have any vision problems? I have another post on here about surgery in the back of the brain. I am so glad to hear that the surgery can be done safely and your daughter is living proof of that!! Thank god for Dr. Scott and his expertise!! were not even sure if molly needs the surgery but i wanted to be educated on the decision to have it done or not. Do you reccomend having the surgery?  Did it benifit your daughter? Were there any warning signs something was wrong? Like extreme tiredness, vision problems, TIAs or any thing else you can think of?
Thanks again Molly's mom
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my now almost 19 year old daughter/sister have moyamoya
 
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