reefer, dude, moyamoya and a anyeruism is 2 different things........... a aneyeruism is a weak spot or bulge in a vessel.  Moyamoya is the systematic progessive collapse of the carotid artieries. and the growth of other arteries to try and maintain adaquate blood flow to the brain

the rapidness of Treatment for moyamoya would depend on the severity or progession of your case and your surgeons availablity.

The treatment for moyamoya by either direct or indirect bypass involves using a temple artery to supply blood beyond the point of collapse. Because of  the proximity of the temple artery(s) to the eyes, you would have tro expect the swelling and black eyes after surgery. Do your resreach and find out what your dealing with for sure. All of us will help you with any question you may have.

I am not trying to be rude but rather my son was first diagnoissed as a possible anyeruism then with MM. treatments are totally different, and expertise with MM is limited.

Mike

Hi Q, Welcome to our MM family!

That runaround you dealt with is very common in the medical profession when dealing with MM. I have to agree with Moira 100%. It depends on how good your doctor is at treating this rare disease that decides how soon you’ll get treatment after your diagnosis. This is a progressive disease, it gets worse over time and you’re always at risk for a stroke with MMD at any stage, so prompt treatment is so important! Delay in treatment is a particular pitfall we see due to lack of knowledge and experience with "the disease itself." That’s why we always urge a second opinion with a MM expert, one who deals with this disease on a daily basis. Unfortunately there are only a few MM experts in the country, but they are out there. Patients usually send the MM specialist their films to get their expert opinion and direct them on the correct path of treatment.

A great piece of advice is to learn all you can about this disease. If you arm yourself with knowledge, then no one can steer you away from the treatment that’s best for your particular case. The facts will speak for themselves, and that’s comforting in a world that doesn’t know enough about this rare disease.

Regarding your question as to the mental decline, that's so hard to say, because no two cases of MMD are the same because of each persons personal factors involved. It varies from patient to patient, but the possibilty of a stroke always exsists in anyone whose diagnosed with MMD and there lies the danger. With MMD, your arteries progressively narrow, so your brain lacks the proper amount of blood/oxygen that it so desperately needs, and the MM vessels that formed, even though they are helping with the blood supply, they are abnormal vessels and they are weak and fragile and at any time can rupture and bleed and cause a stroke and mental decline.

If you have any questions, please don’t hesitate to ask. No question is too small. We’ve all been down this road and understand. We’ll be happy to help you or a family member in any way we can.

You’re in my thoughts and prayers.

Mar

Oops.  Didn't mean to call it MMR, make that MM.

There may be a slight difference in how the term aneurysm is used here.  I’ve seen the term used to describe a “weak spot” in a vessel but also to describe the actual hemorrhage after the “weak” vessel breaks and bleeds into the brain, (Hemorrhaging stoke) and probably in this way the term is used to describe a MM vessel hemorrhaging/bleeding into the brain.  It may also be used to describe a weak MM vessel itself, which in effect can meet the definition of an aneurysm.   

For me the turn around time from my diagnoses to treatment was VERY short.  Mar 19 diagnosed with MM, Second opinion sought mid April, TREATMENT to include direct by-pass surgery in May 16! I’m getting the staples out TODAY!   

I am probably the luckiest person to every have been correctly diagnosed with MM!  I only have it on one side (left) so far.  I have had no damaging or debilitating symptoms or side effects.  And my prognoses from here on is GREAT!

The important issue with anything to do with MM is to get an EXPERT opinion.  Someone who deals with this on a regular basis! 

Good luck,
Carol Mae