My daughter's scar is hid by all her hair unless the wind blows sometimes it can be seen. Some of the area of the scar the hair grew back and some didn't.

Moyamoi has put things into proper perspective....your health!

As for the scars and how and where they will actually be located on the patient differs greatly from one person to another.

Your scar will be placed according to where YOUR STA (superficial temporal artery) is mapped (via doppler) on your head. It is different for all of us....that ultimately remains to be determined in the surgical arena itself.

If you are considering Dr Steinburg, well....you are in absolutely great hands....and that is what really counts.

Hey.....I was so proud of my scars......I wear them like a badge of honor! I earned them and they are mine....with all the bragging rights that go with it!!!!!

Oh and as for who will monitor you after surgery, as you are from another state..... You will need a good recommendation for a vascular neurologist near where you live. I believe the folks at Stanford would certainly give you the best choices to followup with your care locally. And if you can......you can always return to Stanford for followup...although, that is not practical for some patients due to time and money restrictions. But, as long as you have a good Doc to monitor you....then you should do just fine.

I hope all goes very smoothly and with minimal scars for you.

best wishes...Diane

Hi,

We lived in California at the time of my daughters surgery.  We then moved to Texas  less then 3 months after (with Dr. Steinbergs blessing).  Holly and I then flew back for the 3 month post op check up.

Since then, he has released her, and we see a local neurosurgeon who has had a little experience with MM.

We have learned that none of her doctors will take any chance with her, they communicate with Dr. Steinberg when needed.  I also call his office from time to time with a question.  They have been very helpful.

IMO, you need to go with whomever you are the most comfortable with, as you are the one having the surgery. 

Have a great day!

Hillary

holyreefer wrote on Jun 13^th, 2007 at 11:36am:

You have to make decisions about your care as you see appropriate, but IMO, you have to ask yourself, are you and your family basing your decisions on the many important factors related to MMD? This is a rare disease and there are many important factors to consider to help assure a successful surgery. Experience and knowledge of this disease would be a number one factor, IMO. To know which method of surgery is best for your particular case and how much experience the surgeon has with each method. This is brain surgery; a very complicated and intricate procedure. It involves many meticulous steps in too many areas to mention. I would want to examine that EXPERIENCE with everyone involved in the process, to better assure a successful outcome.

As far as other options, I wish there were other options for MMD, but surgical management is the only option to reduce the risk of a stroke, and delay could allow unnecessary progression of disease.

That's my 

Good Luck!

Mar