Welcome, Guest. Please Login or Register
Moyamoya.com
 
NEW search box below... Search Moyamoya.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday ListDonate  
 





Page Index Toggle Pages: 1
Send Topic Print
Follow-up on Angio (Read 1752 times)
Greg-NJ1
Experienced Poster
***
Offline


Mis-diagnosed with MM
in 2005, arterial restricion

Posts: 248
Teaneck, NJ
Gender: male
Follow-up on Angio
Jul 19th, 2007 at 6:36pm
 
Hi everybody  Smiley

I just got home from my doctors appointment at Columbia. This appointment was a follow up to the Cerebral Angio that I had a few weeks back (different doctor and hospital). The good news is that they were able to directly compare my angio from 18 months ago to my recent one....GOOD NEWS....everything appears stable...no changes in 18 months.....

Bad news is that they did not confirm the dysection diagnosis, but indicated that it is very possible. MM was mentioned, but again not very likely.....so, it looks like I am being placed in the AVM bucket.  So, next step....time to contact Dr. Steinberg for "just in case" opinion.

TCD-CO2 challenge test also showed no change. CT-Perfusion showed that the blood is getting everywhere it needs, just a slower than the right side.

More good news...they finally gave me permission to start living life again...ok, actually it was permission to start doing more excercise...finally...back to the gym....my old home away from home....the advice...take it easy for a while...but get things moving again...slowly.

Needless to say, no change is good news.....still there...but not changing....better than the alternative. 

Thanks again to everyone for their support.....(I think I've got be one of the longest diagnostic timings on here, or at least the most confusing).  Smiley

Thanks again,
Greg
Back to top
  

I was misdiagnosed with MM in March of 2005. In January 2006, I was told it is not MM, but rather a massive restriction in the MC1 segment of my left carotid artery.
 
IP Logged
 
moyamoi
Ex Member


Re: Follow-up on Angio
Reply #1 - Jul 19th, 2007 at 10:09pm
 
Hi Greg,
That's Great news!! Glad t o hear that everything is as it was and you are getting blood to where it is needed. Just keep hanging in there and you will eventually get to the bottom of this. Great news about going back to the gym - as you say just take it easy and it won't take long to regain your fitness.
Best wishes Moira
Back to top
  
 
IP Logged
 
lotsofkids
MM.com Benefactor
***
Offline


Moyamoya...Oh boya boya!

Posts: 333
Akron, USA, usa, 421, 123, OH, Ohio
Gender: female
Re: Follow-up on Angio
Reply #2 - Jul 22nd, 2007 at 12:14pm
 
Greg.....

Just consider yourself EXTREMELY special....LOL !!!!

A rose by any other name....still smells as sweet! No matter "what" they want to call you....you will always be a proud (card carrying) member here on the MM board!

smiles...Diane : )
Back to top
  

Hmmm....seems I'm kinda "special" LOL
 
IP Logged
 
Page Index Toggle Pages: 1
Send Topic Print



Moyamoya.com Forum » Powered by YaBB 2.4!
YaBB © 2000-2009. All Rights Reserved.


©2003-2018 Web Vision Enterprises LLC All Rights Reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.

You may view our privacy policy and financial disclosure statement here





Valid RSS Valid XHTML Valid CSS Powered by Perl Source Forge