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Moyamoya.com Forum › NON Moyamoya Related Topics › Daily Jibber Jabber › Talk about surprise!

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Talk about surprise! (Read 2681 times)

Rena

Senior Poster

Offline

Hi, My son Tyler was diagnosed
with MM in 2003

Posts: 467
, Colorado, USA
Gender: female

Talk about surprise!
Oct 9^th, 2007 at 10:15pm

Well Tyler went to see a new PCP today and boy was I surprised to find out he knew about MM! Once he read over Tyler's medical record the first thing he did was to check his blood pressure to make sure it wasn't high.

Now I just need to get him to understand Tyler's migrains, he seems to think they are connected to Tyler's Cerebal Palsy. I told him they didn't start till after the stroke, but heck if his ideas help with Tyler's migrains or CP I will be happy.

I've learned to never underestimate the impossible. -Blake Sheldon-&&There are no failures, just options tried. -Thomas Edison-&&

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mg12061 Old-Time Poster Offline Posts: 946 Albany, USA, usa, 492, 84, NY, New_York Gender:	Re: Talk about surprise! Reply #1 - Oct 11^th, 2007 at 11:05am WOW That's great!!! I sure do hope he can help.Good luck. You'll have to keep us posted. Mary Grace
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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: Talk about surprise! Reply #2 - Oct 11^th, 2007 at 12:39pm Hey Rena - that's awesome! Hooray for the new doc! -Shari
Back to top	A smile is contagious...start an epidemic! Dr. Scott did my surgeries - 12/29/03 and 1/5/04 IP Logged

Lore MM.com Benefactor Offline My brother Kevin (Cubbie) has Moyamoya Posts: 819 Delaware, USA, usa, 419, 133, OH, Ohio Gender:	Re: Talk about surprise! Reply #3 - Oct 11^th, 2007 at 8:20pm Hi Rena, Great news! A doctor familiar with MM! That's a great start! Hope the good doc can help Tyler with his migrains. Wouldn't that just be the icing on the cake?! Only the very best to you and Tyler. Keep us posted. Hugs, Lore
Back to top	"What lies behind us and what lies before us are tiny matters compared to what lies within us." - Ralph Waldo Emerson IP Logged

Rena

Senior Poster

Offline

Hi, My son Tyler was diagnosed
with MM in 2003

Posts: 467
, Colorado, USA
Gender: female

Re: Talk about surprise!
Reply #4 - Oct 11^th, 2007 at 9:02pm

I will definitely keep you all updated on this. I was already for the questions about MM that I didn't know what to say when the doctor already knew what it was...LOL

Tyler is also severely swayback, the doctor said if we could get his spine in the natural position it should help with the migrains and his CP. Not sure if it will help with the migrains, but heck just improving Tyler's pain level from his CP would be great.

I also have a question for those of you with kids that have had a stroke: Have there been any changes in the growth rate of the side of the body affected by the stroke? Tyler's left side seems to be growing slower than his right side. He had to get a heal lift for his left leg last year, and even his left arm seems shorter than the right one.

I've learned to never underestimate the impossible. -Blake Sheldon-&&There are no failures, just options tried. -Thomas Edison-&&

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