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Moyamoya.com Forum › Moyamoya Related Topics › Moyamoya Related Information and Support › Post surgery, Brain "shakes" or "sp

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Post surgery, Brain "shakes" or "sp (Read 4753 times)

Emily

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Diagnosed Oct 2005. Direct
bypasses: Nov 05 Apr
06

Posts: 259
Brisbane, Australia
Gender: female

Post surgery, Brain "shakes" or "sp
Mar 2^nd, 2008 at 6:54am

hi all, been a while since i've been active...

quick history:
age no 25.5 years, diagnosed with MM in october 2005, first stroke sept 2005, subsequent strokes sept 2005, to april 2006.
Left side sta-mca bypass (direct) november 2005\Right side direct bypass april 2006

now...
throughout most of 2006 and 2007 the only blood thinner i was on was aspirin, 150mg daily (plus verapmil for headaches, which i have since stopped)..... then towards the end of 2007 i started to get frequent "brain shakes" or "brain spins".. where for a VERY short time (micro-second) it felt like my brain did a quick spin or shake inside my head.. then went away... kind of a disconcerting feeling... ended up going back on plavix (clopidogrel) , which i have now been back on for 4 months and feeling fantastic...
just wondering if anyone else has experienced these symptoms? very hard to explain/describe... like a shake, spin or even possible "swelling".. which lasts only a micro second..

doesn't feel like bleeding at all, as that is usually indicated by sharp pains.... perhaps a very very quick tia? or very very brief "struggle" for the blood to flow through a narrowed or MM vessel? or perhaps incredibly short seizures? i dunno.... hey are very quick but not very nice, and i am curious!

cheers...

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Becky Old-Time Poster Offline Stroke10/03, Diagnosed6/04, Unilateral Surgery9/04 Posts: 532 Minneapolis, USA, usa, 303, 84, MN, Minnesota Gender:	Re: Post surgery, Brain "shakes" or &quo Reply #1 - Mar 3^rd, 2008 at 7:41pm I am sorry to hear more discomfort. I have not exparienced what you described. I would call Dr.Stinberg and see what he thinks. Good luck finding out what that is. Your in my prayers Becky
Back to top	What doesn't kill us, makes us stronger. And sometimes leaves a cool looking scar. STA-MCA bypass and EMS Surgeries done at same time at the Mayo clinic IP Logged

Emily Senior Poster Offline Diagnosed Oct 2005. Direct bypasses: Nov 05 Apr 06 Posts: 259 Brisbane, Australia Gender:	Re: Post surgery, Brain "shakes" or &quo Reply #2 - Mar 3^rd, 2008 at 8:06pm no luck with that.. i am in australia.. and don't have a doctor on hand anymore.. oh well... was just interested...
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moody

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In all the thing I lost
I miss my mind the most.

Posts: 207
richmond, USA, VA, Virginia
Gender: female

Re: Post surgery, Brain "shakes" or &quo
Reply #3 - Mar 4^th, 2008 at 11:36pm

Hi Emily, I'm glad that you post it, I had what I think it same with what you decribed about 3 months now, since my treatment for ear infection. I wonder if ear have any thing to do with it, it seem only second but i feel more like dizzy too, it more worse when i turn head so fast or look up fast( my husband keep joking that my head only halful so itshaked when i moved around Wink

) i'm on aspirin 325mg a day, i have appt on march with my neuro, and i will email to ask my surgeon, any news i will let you know. Oh, and for that cousin of my in Australia, he doen't have MM, he just have a massive migrant headache all the time ; Grin

(that what he told me)
Nice to see you post, take care
Kieu

Yesterday is past, tomorrow is future, today is the gift, that why we call it present.

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moody Experienced Poster Offline In all the thing I lost I miss my mind the most. Posts: 207 richmond, USA, VA, Virginia Gender:	Re: Post surgery, Brain "shakes" or &quo Reply #4 - Mar 20^th, 2008 at 7:46pm Hi Emily, my neuro said that it is related with the inner ears, so I have appt with ears, nose, and throat doctor, will post when i find out something.
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moody Experienced Poster Offline In all the thing I lost I miss my mind the most. Posts: 207 richmond, USA, VA, Virginia Gender:	Re: Post surgery, Brain "shakes" or &quo Reply #5 - Apr 12^th, 2008 at 1:09am Hi Emily, just update, i have seen ear doctor and he said that i have some fluid in my ear and that may cause the spell and he start send me to have CTof the ear and balance test but i just deal with it rather than go to appt. i'm tired to see doctor. just that bit of information i hope it help. Kieu
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patch

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Posts: 51
NEWCASTLE, Australia, australia, 325, 238, NSW, New_South_Wales
Gender: female

Re: Post surgery, Brain "shakes" or &quo
Reply #6 - Apr 14^th, 2008 at 6:56pm

hi Emily

Nice to see your message - I too have been inactive, yours was the first message I read.

Back in 2006, I had some similar episodes, was also placed on Plavix and have been "healthy" since.

You mention no doctor around - how far apart are your checkups with your neurosurgeon and neurologist?
(I am on yearly with neurologist and 5 yealy with neurosurgeon).

Helene

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Emily

Senior Poster

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Diagnosed Oct 2005. Direct
bypasses: Nov 05 Apr
06

Posts: 259
Brisbane, Australia
Gender: female

Re: Post surgery, Brain "shakes" or &quo
Reply #7 - Apr 18^th, 2008 at 1:25am

i was meant to be on 6 monthly checkups... but i moved interstate and am seeing a neurosurgeon (who i don't like much) yearly, yearly MRI's and no neurologist.

yeah i think mine might have been blood pressure related, and before when on plavix for a longtime i have been aememic, might be again, got blood tests coming in.
how long have you been on plavix helene? i am going overseas next jan for at least 3 years, and dunno if i'll stay on it for the whole time or what..

emily

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birdlegs

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Orange, USA, usa, 315, 278, TX, Texas
Gender: female

Re: Post surgery, Brain "shakes" or &quo
Reply #8 - Jun 20^th, 2008 at 7:07pm

Hi Emily,

My name is Pam and I am 57 diagnosed with MM in January 2006 with a STA-MCA on my left side one week later, still waiting for the other shoe to fall (right side).

For most of my adult life I have heard my heartbeat in my ears. After my surgery it changed to a whoosh and sounds kinda like when you get an ultrasound on your baby.

About 6 months after my surgery when I stood up I would get a very fast spinning sensation in my head (no sound)It has now progressed from a few to lots of them almost daily (really scary) It's a feeling of disorientation with a faint tinny drum sound, exactly like what you describe.

I have lightly mentioned it to my MD with no results, just raised eyebrows when I announced that I was hearing things, I am so glad I saw your post I was beginning to think I was loosing it.

It never occurred to me that this might be connected I wonder what other strange things I can attribute to MM.

Well I guess its back to the doctor again.

Thanks

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