Steph,

You're right - I don't know what's going on behind the scenes, and that's irrelevant to me, BECAUSE it should stay BEHIND THE SCENES. 

You're also right - this is DJ's forum, does this mean that there's only one viewpoint?  Only one type of posting?  If you don't want to hear a reply, you stop someone from further posting?  Is that beneficial to Moya Moya patients?   

Again, you're focusing on this poll -- I didn't read it that way and THAT is MY opinion.  I'm assuming there's still some freedoms on this board.  I certainly wasn't advocating that DJ should keep or maintain a poll - I was actually agreeing with his opinion on this. 

You are entitled to your opinions about JeepNerd -- I don't think everyone feels that way, I know I don't.  He's someone who's in need of help - HIS WIFE WAS JUST DIAGNOSED WITH MOYAMOYA DISEASE - DID WE FORGET THAT?  What happened to compassion around here? 

I'm frustrated only because there seems to be a prevailing attitude on this board.  I look at it as I do america - I am a citizen, and am free to criticize it because I am.  My father still thinks I don't have a disease, or that I had a stroke.  He's clueless.  Do I get frustrated with him?  Yes, of course.  But I understand - he hurts, he hurts because he sees his daughter in a way that he's not seen before. 

We don't know what's going on with this guy or what pain he's in that his wife is sick.  He could be in serious denial -- I know other patients like that on this board.  We do a serious disservice to us and them by challenging them with ludicrousness. 

And I'm going to address to DJ because I'm sure he's capable of responding himself. 

DJ, I'm not trying to antagonize you.  While I disagree with your approach to some things (not all), I am forever grateful for bringing for this forum and allowing all of us to participate.  For me, it has been very beneficial.  I'm assuming your goal (I only assume, b/c I've never discussed it with you) is to support and spread info about this rare MMD to others.  I am only trying to do the same.  I just think we have to understand that not everyone is the same.  I don't know what's been discussed behind the scenes nor do I care.  I only know what is being read publicly and that is what I'm responding to. 

Thanks for allowing my 2 cents,
Trina

I have problem with gather my thoughts and my words, this afternoon took me almost hour to post my personal problem before and after surgery for Jeepnerd and also tell him that I respect Mar because she is smart, she have a great deal of knowledge and her post is from good intention and that she care so much for MM patients and their family, I also thank DJ for this web site it is save many life include my but after all the typing and posted and find out that I have waste my time because the post is block.

I'm agree with Trina and Shan on their post, this board is for support all of us moyamoya and our familys, and like Trina say about Jeepnerd may live in denial, he doesn't want to hear that his wife is have a terminal illness, that remind me of my husband, even thought he take very good care of me, cry with me when I waiting for surgery and I keep ask him the question "what if.......?" but he sometime thought he just have a nightmare and everything will be better when he woke up, even now after 2 years post op he still not touching my head, and he got mad when I want him to feel my soft spots.

I always think of people on this web site as my 2nd family, as family we do have different opinion, have argue, have fight, but in the end we give big hug, and forgive each other for what ever start the problem, so what ever it worth please make peace, we here to support each other and familys go throught tough time.

That is my 
Kieu