Good to hear everyone's responses! ;
I searched online for sample emergency ID cards and found the following:
- This site provides a blank template for you to enter your info and print. (Watermark says City & County of Honolulu) http://www.co.honolulu.hi.us/esd/ems/emedid.htm
- Specific for Autism: http://www.autismcards.com/id-cards.html
- Deej--I'm liking the top border of this card! http://www.medical-card.com/productInfo.htm
- A little more "obvious" but thought this idea was neat. It was the first I've seen... "Epill Watch" http://www.epill.com/cat53.html
Jan--
Aloha sister! Mahalo for your reply.
Deej--
Yes, the Medic Alert Card and Diabetes card I have are business/credit card size. The Diabetes card I have is pretty neat because across the top are bright orange stripes which really draws one's attention. In bold, right under the stripes, it says "I Have Diabetes." I can scan it and send it to you so you can take a better look at it. I also took a liking to the border above (looks like an EKG) ;
I think having a "fillable" template on this site would be great! You can solicit everyone's ideas and then formulate a 'master' template which you can revise as needed. What do you think?
Kieu,
Wow, that sounds like a very scary experience you had
Lucky the EMS team was able to locate your mother-in-law's phone number! It's great that you have already created a card on your own. I personally believe these "emergency identification cards" can be very helpful in situations such as yours and mine.
Sandi,
I'm not that knowlegable with organizing non-profits (although I've worked for a few), but I believe, if I'm not mistaken, this topic may have been discussed in the past. Lore knows quite a bit when it comes to "legal" and insurance issues, so she may be able to explain...or Deej can explain what actions he has taken already (or refer you to a previous post).
As for 'misdiagnosis' or 'non-diagnosis'....I've been there, done that.
It wasn't until opinions later that I was properly diagnosed. I wasn't told that I had MM (not sure if they knew what it was or just felt surgery wasn't an option at that point). Nonetheless, I was just given Plavix to help control my TIA's I was experiencing...
I believe there are many many many more people out there that are going through what I went through including member on this site who are still searching for more information regarding this "rare" disease"....
Therefore,
I feel raising awareness is key. Any media attention MMians receive is productive. I did interviews on 2 of our local news channels and received numerous calls/emails after the segments ran. I was also thinking that brochures--placed in the waiting rooms of doctors' offices may help--or better yet, if there was an "official" or general MM brochure, the pharmaceutical reps could distribute them when they do their physician visits. I'm thinking more for the reps in the "neuro" field that market Aggrenox and other medications used/prescribed for MMians. I once read that a member said he/she printed info from this site and took it with him/her to their doctor visits and just hands the doctor the printed material if they don't know what MM is...
Just my thoughts...
Thanks for your responses! ;
Aloha,
Shan