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butch

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I love YaBB 1G - SP1!

Posts: 19
woodford, USA, usa, 479, 157, VA, Virginia
Gender: male

SURGERY JULY 22
Jul 22^nd, 2008 at 8:31pm

HI EVERYONE. JUST WANTED TO UP DATE YOU ABOUT BUTCH

TODAY HAS BEEN ALONG DAY AND IT TOOK US FROM 800AM UNTIL 300PM. BEORE BUTCH'S SURGERY BEGAN . IT HAS BEEN LONG AND I AM SITTING HERE WAITING TO HERE WHAT IS GOING ON WITH HIM, WITH HIS PARENTS. IT SEEMS AS THIS PROCEDURE EVERYONE IS CONFIDENT ABOUT IT. THAT IS A WONDERFURL THING TO KNOW AND THE COMFORT THAT JILL AND HER DAUGHTER, WAS JUST A RELIEF FOR ME AND BUTCH. HE HAD TO BE MORE ANXIOUS BECAUSE HE HAD TO WAIT UNTIL 3PM AND IT WAS SUPOSSED TO BE AT 10AM. S

ALSO THE COMFORT AND SUPPORT THAT YOU GET FROM THE OTHER MOYA MOYA FAMILIES THAT ARE HERE.
THANKS FOR YOUR SUPPORT
BUTCHS WIFE CHINAYA

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Lore

MM.com Benefactor

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My brother Kevin (Cubbie)
has Moyamoya

Posts: 819
Delaware, USA, usa, 419, 133, OH, Ohio
Gender: female

Re: SURGERY JULY 22
Reply #1 - Jul 22^nd, 2008 at 8:52pm

Hi Chinaya,

Thanks for the update on Butch.

I'm glad to hear Jill and Tara were with you. I know from personal experience what a comfort they were to me when my brother was going through both surgeries at Stanford. They are both a God send. Plus, Tara has been through the surgery so she can bring a patient perspective to the picture.

I too had the support of other Moyamoya families that were at Stanford at the same time and they were very supportive and I leaned on them a lot and especially the ones that had already had surgery but were there for follow-up. I made many lasting friendships from those I met while at Stanford.

Dr. Steinberg will be out to speak with you once he has completed the surgery and give you specific information relating to Butch's surgery and increased blood flow and then Butch will go to ICU.

Hang in there and know you are all in my thoughts and prayers.

I can relate to the long days and I know it has been a long day for you already so I hope you all get some rest real soon.

Keep us posted and know we are here to support you through Butch's surgeries.

Hugs,

Lore

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"What lies behind us and what lies before us are tiny matters compared to what lies within us." - Ralph Waldo Emerson

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moody

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In all the thing I lost
I miss my mind the most.

Posts: 207
richmond, USA, VA, Virginia
Gender: female

Re: SURGERY JULY 22
Reply #2 - Jul 23^rd, 2008 at 11:38am

Hi Chinaya, i know how hard it is to waiting for surgery, sometime hospital have emergency surgery and we have to wait , and waiting for the love one in surgery is stressful too but Butch will be fine, I sure doctor Steinberg will talk to you as soon as he done, Jill is very nice, I have not meet her yet but we talk couple time on the phone, and it is wonderful to have her and Tara there, it is very comforting. When I have surgery an moyamoya member said she will seat with my family but for some reason she not come, I'm very sad for that. It's comfort and support when you have somebody in the same kind of illness to talk with.

Thank for the update on Butch, he in my thoughts and prayers, keep us posted.
Smiley

Kieu

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Yesterday is past, tomorrow is future, today is the gift, that why we call it present.

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butch

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I love YaBB 1G - SP1!

Posts: 19
woodford, USA, usa, 479, 157, VA, Virginia
Gender: male

Re: SURGERY JULY 22
Reply #3 - Jul 23^rd, 2008 at 3:05pm

just wanted to let everyone know butch is great and doing well he us talking and feeling great. no side effects right now. he looks really good. it has been great here and butch came out of surgery just fine and his blood flow was a 1 and now it is a 13 amazing, god has been great and he is good. i give him all the glory and the praise

thanks everyone for the support
amen
chinaya

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KTiller

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Posts: 355
Freeland, USA, usa, 51, 28, WA, Washington
Gender: female

Re: SURGERY JULY 22
Reply #4 - Jul 23^rd, 2008 at 4:07pm

Hi Chinaya,
Please let Butch know that his moyamoya family is rooting for him. Sounds like his surgery was very successful. Hope you can all take some time to catch up on your rest now. I can imagine how stressfull it must have been for you waiting - trust me, it's a lot easier being the patient. So take care of yourselves, best wishes to Butch and hope he has a great time between surgeries. You have good cause to celebrate.
Be sure to tell Butch to take time out to nap when he feels tired - rest is so very healing.
Kim

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lisalisa

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Posts: 11
Amityville, USA, usa, 506, 107, NY, New_York
Gender: female

Re: SURGERY JULY 22
Reply #5 - Jul 23^rd, 2008 at 7:07pm

Hi Chinaya and Butch,

So glad everything went well with the first surgery. The Stanford Team is amazing. I know Butch will continue to do well and his second surgery will go just as well. Make sure he gets his rest and he will know what his limitations are. Every day he will see improvement. My husband is 3 and 4 weeks post surgery and is doing great. His recovery is unbelievable.

Please keep us posted and know that we are all routing for you!!
Lisa

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Lore MM.com Benefactor Offline My brother Kevin (Cubbie) has Moyamoya Posts: 819 Delaware, USA, usa, 419, 133, OH, Ohio Gender:	Re: SURGERY JULY 22 Reply #6 - Jul 23^rd, 2008 at 8:09pm Hi Chinaya and Butch, Great news! So glad to hear Butch did so well. Like the others mentioned, get some rest including Butch and I'll be thinking about you all and waiting for updates. Stay strong and keep the faith. Hugs, Lore
Back to top	"What lies behind us and what lies before us are tiny matters compared to what lies within us." - Ralph Waldo Emerson IP Logged

pasnblu

Experienced Poster

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Diagnosed April 19, 2007

Posts: 112
Fernandina Beach,Florida 32034
Gender: female

Re: SURGERY JULY 22
Reply #7 - Jul 24^th, 2008 at 11:03am

Hi Chinaya and Butch
Today is the one year anniversary of my 2nd surgery and I am doing great. The left side was a doozy for me, but everyone handles it differently. My mom was there for me waiting and there was a delay in starting,cause they couldn't find me!!! They thought I was in admitting, when in fact, I had never even left the hospital (I actually left for about 2 hours after the first surgery, but had to be readmitted due to a TIA - the last one I have had since completing both surgeries).

Anyway - hang in there. Keep your chin up. Attitude makes all of the difference in the world. I will say a prayer for you and Butch and the surgical team (the best in the world).

Hugs
Sandi

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Seachelles Old-Time Poster Offline God never gives us more than we can handle. Posts: 681 Fredericksburg, USA, usa, 474, 157, VA, Virginia Gender:	Re: SURGERY JULY 22 Reply #8 - Jul 24^th, 2008 at 3:41pm Great news! I'm glad Butch came out of surgery doing well. Shane (my brother) and I have been praying for him hoping everything would go well. Thank you for the update. When you all get back to Virginia, we will have to meet since you all live so close. Take care and a speedy recovery to Butch! Michelle & Shane
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cass/kate

Experienced Poster

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Daughter Kate has moyamoya.

Posts: 247
Dallas, USA, usa, 270, 251, TX, Texas
Gender: female

Re: SURGERY JULY 22
Reply #9 - Jul 24^th, 2008 at 6:23pm

Dear Chinaya and Butch -

Am SO glad to hear that the surgery went so well. We have been praying for you both. Am glad Jill and Tara were there for you. THEY ARE THE BEST !! I know, because they were there for us two-and-a-half years ago when Kate, my daughter, had her surgeries. And it goes without saying that Dr. Steinberg, Theresa, etc. are the best.

Hope all continues well for you. You are in my heart.

God Bless you both.

Cass, Kate and Jon in Texas

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« Last Edit: Jul 24^th, 2008 at 6:24pm by cass/kate »

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LA

Senior Poster

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Moyamoya survivor since
1999!

Posts: 334
Kneeland, USA, 15, 113, C
Gender: female

Re: SURGERY JULY 22
Reply #10 - Jul 29^th, 2008 at 11:22am

Good Morning Butch!

I see we're on line at the mm site at the same time. I've been keeping up with your Stanford visit, and your mm 'experience.

Glad you're surgery went well and that you're up and posting today.

I had my surgery in 1999 just before I turned 50.
The surgery saved my life ---

Keep on getting better!
My thoughts are with you.

Linda A.

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Linda (LA)

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