Moyamoya.com Forum

Dec 8^th, 2025 at 5:01pm

	Welcome, Guest. Please Login or Register
	NEW search box below... Search Moyamoya.com with Google!

Moyamoya.com Forum › Moyamoya Related Topics › Moyamoya Related Information and Support › Topamax!!

(Moderators: DJ, MrsDeej)

‹ Previous Topic | Next Topic ›

Pages: 1

Topamax!! (Read 3032 times)

larab

New Poster

Offline

Posts: 45
norwood, USA, usa, 513, 83, MA, Massachusetts
Gender: female

Topamax!!
Sep 5^th, 2008 at 8:44pm

Hello All,
I have good news. I was getting headaches and right sided paralysis quite frequently. In July my neurologist started me on Topamax and it seems to be working for me. The headaches have stopped as well as the paralysis. the severity of both have diminished as well. This is all good.

I hope that this may help some of you. It is worht a shot. The good thing about this medicine is that you can increase the doseage. I am on 50mg in the am and pm. Side affects are going away. Thank goodness/

Let me tell you that it is well worth it. Good luck and hope you all are doing well and hand in there. Keep smiling.

Larab

IP Logged

Click Here to visit the Moyamoya.com Facebook page!

lotsofkids MM.com Benefactor Offline Moyamoya...Oh boya boya! Posts: 333 Akron, USA, usa, 421, 123, OH, Ohio Gender:	Re: Topamax!! Reply #1 - Sep 6^th, 2008 at 3:29pm I was taking 25 mg topamax daily for my headaches, but recently increased to 50 mg and that seems to work better for me. The side effects of topamax can be a little less mental clarity (fuzzy brain) LOL....but hey....I blame that on the MM...anyway! Hugs...Diane : )
Back to top	Hmmm....seems I'm kinda "special" LOL IP Logged

Shan

Old-Time Poster

Offline

MM Survivor ~ May 27,
2005

Posts: 849
Honolulu, USA, usa, 376, 346, HI, Hawaii
Gender: female

Re: Topamax!!
Reply #2 - Sep 8^th, 2008 at 3:20pm

hi laura,

great to hear that you found something that is helping to alleviate your headaches. i used to take dilantin, then another medication (sorry, can't remember), and then tompomax. i think i had side effects with topomax and dilantin. what kind of side effects are you having/had? right now i'm taking neurontin.

thanks for sharing the good news! Wink

it's always great to hear that someone is doing better. Smiley

take care,
shan

"Love, Accept And Respect All Things And All Situations In Life … They Are Especially&&Designed For Your Personal Learning" ~Howard Willis

IP Logged

Becky

Old-Time Poster

Offline

Stroke10/03, Diagnosed6/04,
Unilateral Surgery9/04

Posts: 532
Minneapolis, USA, usa, 303, 84, MN, Minnesota
Gender: female

Re: Topamax!!
Reply #3 - Sep 8^th, 2008 at 6:35pm

I loved Topamax!!!! I was on 25mg a day then went up to 50mg. Then my new insurance decided to clasify it as something I can't remember making it $80 for a month of it so i had to switch. My migraines have now but all subsided everyonce and a while I still take Fiorcet. I am soooooooo HAPPY you found something that WORKED!!!
Take care
Becky

What doesn't kill us, makes us stronger. And sometimes leaves a cool looking scar. STA-MCA bypass and EMS Surgeries done at same time at the Mayo clinic

IP Logged

larab

New Poster

Offline

Posts: 45
norwood, USA, usa, 513, 83, MA, Massachusetts
Gender: female

Re: Topamax!!
Reply #4 - Sep 14^th, 2008 at 8:13pm

Hi Shan,
Some of the side effects I was having that are going are going away are pins and needles in the arms and legs. Not too bad. Sometimes I get a little unsteady on my feet. They are going away.

Why didn't they tell me this 2 yrs. ago!! Undecided

Trial and error I guess. I hope this helps you. All I can say is that the pros definately out way the cons. ; Grin

Keep smiling and always stay positive. I always tell myself that there is unfortunately someone worse off than you. Especially someone here Cry

Keep smiling everyone.

LaraB

IP Logged

ladybugz Experienced Poster Offline Love one another Posts: 101 USA, usa, WA, Washington Gender:	Re: Topamax!! Reply #5 - Sep 30^th, 2008 at 3:24am ah so the Topomax is the key? I wanted to go off of medicine someday... but I have been ong 100mg for over a year now and I feel pretty good. It then makes me a fraid to consider going off. I want to be free of the condition and even go work/study abroad. Is this not possible? Do we have access to this medication overseas?
Back to top	IP Logged

Pages: 1

‹ Previous Topic | Next Topic ›

« Home

‹ Board

Top of this page

There are user(s) in the live chat room. Go there now...

DISCLAIMER: All information contained on this web site is for informational purposes only. It is in no way intended to be used as a replacement for professional medical treatment. moyamoya.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site. All information taken from the internet should be discussed with a medical professional!

Moyamoya.com Forum » Powered by YaBB 2.4!
YaBB © 2000-2009. All Rights Reserved.

©2003-2018 Web Vision Enterprises LLC All Rights Reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.

You may view our privacy policy and financial disclosure statement here