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Moyamoya.com Forum › Moyamoya Related Topics › Moyamoya Related Information and Support › help please

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help please (Read 2133 times)

Reneesmum2001 New Poster Offline I love YaBB 1G - SP1! Posts: 2 Auckland, New_Zealand	help please Oct 6^th, 2008 at 2:14am I was wondering if any of you know a family that have a child with Down syndrome and also the diagnosis of Moyamoya. Received a request for help today from a family whose little 6 year old girl has been diagnosed. Thank you for your time.
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mc823923

Junior Poster

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My dauaghter Annamarie
lives with mm

Posts: 83
Baton Rouge, USA, usa, 345, 271, LA, Louisiana
Gender: female

Re: help please
Reply #1 - Oct 6^th, 2008 at 6:28am

Hi,

My 16 year old daughter has Downs and MMD. She had her first surgery last April. We are going for her follow-up in 2 weeks and she may have the other side done at that time. She did great. I would love to talk this mom and answer any questions I can. Feel free to e-mail or call at 2225-205-1685 any time if I can help.

Love and prayers,

Margaret

Margaret

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mg12061 Old-Time Poster Offline Posts: 946 Albany, USA, usa, 492, 84, NY, New_York Gender:	Re: help please Reply #2 - Oct 6^th, 2008 at 9:23am My daughter has Down syndrome and MM.She was almost five at the time of diagnosis.She's now 11 yrs old and doing great.Feel free to pass along my e-mail if you like. MaryGrace mgrace5@nycap.rr.com
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Reneesmum2001 New Poster Offline I love YaBB 1G - SP1! Posts: 2 Auckland, New_Zealand	Re: help please Reply #3 - Oct 6^th, 2008 at 11:03pm Thank you so much for replying to my request for help. I have forwarded your email addresses to the family. Thank you very much
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