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Moyamoya.com Forum › Moyamoya Related Topics › Moyamoya Related Information and Support › Definite diagnosis of MoayMoya

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Definite diagnosis of MoayMoya (Read 1985 times)

smtowngrl27

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Posts: 4
Soap Lake, USA, WA, Washington
Gender: female

Definite diagnosis of MoayMoya
Oct 26^th, 2008 at 3:05pm

Hey there!

Well, we finally got to go see a new neurologist and they said that my husband does have MoyaMoya. They are going to refer him to Dr. David Newell at Swedish Hospital in Seattle for surgery. They said that they hope to have it all done within the next month. I am so happy. I was afraid that they would drag this out.

I want you all to know that I appreciate all of the posts I got when I first visited here. I was scared and didn't really know which way to go for the information I needed. Those of you who posted on my last topic, I really appreciate all of the information you gave me. It was because of that that I started asking doctors questions and getting things done.

So, thanks again. I am sure I will be back to let you all know how things are going.

Helen

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Becky Old-Time Poster Offline Stroke10/03, Diagnosed6/04, Unilateral Surgery9/04 Posts: 532 Minneapolis, USA, usa, 303, 84, MN, Minnesota Gender:	Re: Definite diagnosis of MoayMoya Reply #1 - Oct 27^th, 2008 at 12:48pm Helen, Thank you for the update. I am glad you pushed the issue, and your husband is getting the proper treatment. i will preay for you both and for him to have a speedy recovery from the surgery. If you have any question about the surgery the others and i will be happy to answer any of your questions. Becky
Back to top	What doesn't kill us, makes us stronger. And sometimes leaves a cool looking scar. STA-MCA bypass and EMS Surgeries done at same time at the Mayo clinic IP Logged

MrsDeej

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Posts: 126
Wichita, KS
Gender: female

Re: Definite diagnosis of MoayMoya
Reply #2 - Oct 27^th, 2008 at 1:17pm

It's wonderful news that your husband was properly diagnosed, however PLEASE check your doctors credentials regarding Moyamoya. Just because someone is a neurologist doesn't mean they know how to treat it. You are so close to Dr. Steinberg at Stanford, who is a specialist, I would hate for you to miss out on an opportunity that is so close.

All the best to you and your family!!

Live everyday as if it were your last, ALWAYS say 'I love you' when leaving someone dear to your heart and NEVER go to bed angry!

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