charl wrote on Nov 25th, 2008 at 5:17am:moyamoya is now listed as an occlusive vascular disease and not a cerebral vascular disease any more.
Hi Aimee,
I’m sorry to hear your daughter is having chest pains and continued problems, she’s certainly been in my prayers, but I have to say, there are numerous other conditions a person could have that could cause chest pain and it may not necessarily be MMD. I’m not saying it is or isn’t, I would have no way of knowing, it's just a fact worth mentioning and perhaps worth looking into.
I am concerned about your statement that
“MM is now listed as an occlusive vascular disease and not a cerebral vascular disease any more.”
That’s a heavy duty medical statement. Could you please give us a reference for that shocking information?
Here is a current and reputable list of information about moyamoya, and in every single case it states that MM is a vascular disorder that affects the blood supply to the
brain, and I can’t find where it even implies that MMD affects any other arteries other than the arteries to the brain. So I’m extremely anxious to hear who and where it’s stated otherwise???
Stanford, one of the largest MM centers in the world states: Moyamoya disease is a progressive disorder that
affects the blood supply to the brain. Characterized by a progressive narrowing of the internal carotid arteries leading into the brain.
NINDS - Moyamoya disease is a rare, progressive
cerebrovascular disorder caused by blocked arteries at the base of the brain
Boston Childrens Hospital:Moyamoya syndrome is a very rare disease in which the walls of the
internal carotid arteries - which supply blood to important areas of the brain.
Emedicine- Moyamoya disease is a progressive occlusive disease of the
cerebral vasculature with particular involvement of the circle of Willis and the arteries that feed it.
Wikipedia - Moyamoya disease is characterized by progressive
intracranial vascular stenosess of the circle of Willis.
Brain anurism.com - Moyamoya disease is a condition where there is progressive blockage or occlusion of the ends of the
internal carotid arteries and their major "terminal" branches in the brain.
Columbia University - Moyamoya disease is a rare condition in which the walls of the carotid arteries thicken and the arteries narrow,
restricting or blocking the blood flow to the brain.
UCLA -Moyamoya disease is characterized by the closure of one or usually both
internal carotid arteries in the intracranial region, resulting in the formation of a fine network of blood vessel growth at the base of the brain.
University of Hawaii - Moyamoya disease is a disease of the large
cerebral vessels that results in a network of small collateral vessels that form a pattern on angiography resembling a "puff" or "hazy cloud" of smoke.
Mar
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moyamoya and chest pain, anyone? (Read 4891 times)
