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Moyamoya.com Forum › Moyamoya Related Topics › Moyamoya Related Information and Support › tlc show with moymoya

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tlc show with moymoya (Read 3368 times)

lflores New Poster Offline I love YaBB 1G - SP1! Posts: 42 addison, USA, IL, Illinois Gender:	tlc show with moymoya Nov 25^th, 2008 at 7:31am Hi everyone - just wondering if anyone caught the show the other day on TLC - it was about a girl who was a primordial dwarf and also had moyamoya on both sides. My kids saw it and were surprise to hear it on tv, I fell asleep so didn't catch the show. But hey - it is out there!
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heather New Poster Offline Posts: 16 halifax, Canada, usa, 550, 49, NS, Nova_Scotia Gender:	Re: tlc show with moymoya Reply #1 - Nov 25^th, 2008 at 7:52am i caught the show .. was good but only a short segment on moya moya ....but any exposure to moya moya is good heather
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mfriis

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Proud Dad of Josie

Posts: 12
Nebraska
Gender: male

Re: tlc show with moymoya
Reply #2 - Dec 8^th, 2008 at 7:56pm

I did not see the show either, but Heather is right, any exposure for Moya Moya is positive.

We live in a small town in Nebraska and Moya Moya was never heard of around here. After my daughter was diagnosed with the disease, the local school sent out information to all the students so they would have an idea about what Josie was going through. Also the local doctors said they would always remember this disorder and be on the watch for others who might be suffereing from it.

Any information on Moya Moya for our communities is good and important.

13 Year Old Daughter when Diagnosed with MM
First Surgery 8/2007
Second Surgery 11/2007
Doing Great Now!!!!!

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mlgohsman Junior Poster Offline Failure is NOT a option & giving up would b 2 easy Posts: 97 USA, Saginaw, Michigan Gender:	Re: tlc show with moymoya Reply #3 - Dec 22^nd, 2008 at 11:56pm i watched that show, i love shows on the tlc channel, i was surprised i asked my husband if that was what they said, and it was, i couldn't believe it was on a tv show. great exposure though getting the name and disease out there is great,
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Shari K. New Poster Offline I Love MM.com! Posts: 17	Re: tlc show with moymoya Reply #4 - Dec 27^th, 2008 at 7:54pm Hey lflores, I have been lurking on the board for the past month, as my DH was just diagnosed. I saw your post and realized that we are both from Addison, IL. I'm off Army Trail Rd. near the high school. How weird!?!?!
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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: tlc show with moymoya Reply #5 - Jan 7^th, 2009 at 9:06am Another Shari! That makes 3 Shari's I have known! Anyway, I saw the show too. Apparently there is a strong association with primordial dwarfism and MM. -Shari
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