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Midwest Moyamoya (Read 18761 times)
Michele
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Midwest Moyamoya
Dec 6th, 2008 at 8:13pm
 
ok, So I was extremely surprised to find another MMer living 90 miles away from me, right here in South Dakota.  I was SURE I had to be the only one, based on our rural nature.  So, first of all, who is from the upper midwest?  Minnesota, North Dakota, South Dakota, Nebraska, Iowa area?  I had come across many people from Minnesota and one from Iowa.  Maybe we could all get together sometime!
Michele
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mfriis
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Proud Dad of Josie

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Re: Midwest Moyamoya
Reply #1 - Dec 8th, 2008 at 8:18pm
 
We live in Northeast Nebraska.  We are surpised as well to hear of  other MM folks here in the upper plains.  Our daughter had her surgeries one year ago and is doing great!

mark
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13 Year Old Daughter when Diagnosed with MM
First Surgery 8/2007
Second Surgery 11/2007
Doing Great Now!!!!!
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Michele
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Yankton, USA, SD, South_Dakota
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Re: Midwest Moyamoya
Reply #2 - Dec 8th, 2008 at 11:27pm
 
Hello Mark,
Where in northeast NE are you at?  I am in Yankton which of course is in SE SD!  Look fprward to meeting you all someday!
Michele
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Michele
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Yankton, USA, SD, South_Dakota
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Re: Midwest Moyamoya
Reply #3 - Dec 8th, 2008 at 11:32pm
 
I have been chatting with Nessa, from Brookings, SD and we decided that we absolutely MUST start organizing some kind of meeting for us MMers in the upper midwest.  Who is interested in attending and where would be a good central location?  Also, what is a good time for everyone?  Spring, summer????
Look Forward to getting together with you all!
Michele
Yankton, South Dakota
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mfriis
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Proud Dad of Josie

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Re: Midwest Moyamoya
Reply #4 - Dec 17th, 2008 at 3:41pm
 
Hey Michele,

We live in a small town about one hour south of Sioux City.  A group meeting would be great.  Summer would probably be better for us since Josie is in school during the spring.  But we are open to anything.

Mark
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13 Year Old Daughter when Diagnosed with MM
First Surgery 8/2007
Second Surgery 11/2007
Doing Great Now!!!!!
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Michele
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Yankton, USA, SD, South_Dakota
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Re: Midwest Moyamoya
Reply #5 - Feb 4th, 2009 at 12:50am
 
I am a little disappointed more people aren't interested in meeting in the upper midwest...I now know there are quite a few.  My original intention was to see where everyone would be coming from and then pick a place somewhere central!  At this point, it looks like BBQ at Aaron's!  J/K!  If anyone else would be interested in attending, please make a note here so we can get an idea where people will be coming from!
God Bless You All!
Michele
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Michele
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Re: Midwest Moyamoya
Reply #6 - Feb 16th, 2009 at 7:45am
 
Please let me know where more people would be willing to attend...
Omaha, Minneapolis, or another suggestion
June or July

There are some pretty cheap fares out of Omaha (I am told) if anyone from further away wanted to attend.  Pretty good selection of rooms, a great zoo, a couple casinos, and golf courses for those interested in that, and fabulous shopping.  But may be too far away from all the Twin Cities people??  Just thinking out loud here! Let me know. 

At this point, more interest has been expressed from the Iowa, Nebraska area, so we were leaning towards that direction! 

God Bless You All!
Michele
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Reagan
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Re: Midwest Moyamoya
Reply #7 - Feb 16th, 2009 at 11:39am
 
I haven't been in on this topic, but I live in Missouri. I'm planning on attending the Stanford picnic but would love to meet up with other MM'ers close to home. Omaha would be wonderful and you can get some cheap fairs on hotels and there are some wonderful places you can go to. I think late June or early July would be a good time in case there are others trying to go to the Stanford picnic. Omaha is about 4 hours drive from me. However, I am open to about anything.

Reagan
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Michele
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Yankton, USA, SD, South_Dakota
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Re: Midwest Moyamoya
Reply #8 - Feb 16th, 2009 at 8:32pm
 
We do have a couple of MMers in school that requested the summer months, and August can be so blasted hot and humid here, I was thinking either June or July.  It would be wonderful to get as many people as possible to attend.  I was looking last night and Omaha has quite an array of prices for motels, depending on what you want to spend.  My sister lives in Florida and she has flown into Omaha for under $200, which might make it an option for those living farther away. 

Again, if anyone is interested or has any suggestion, please let me know.   Wink

God Bless You All
Michele
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Skay
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Re: Midwest Moyamoya
Reply #9 - Feb 17th, 2009 at 11:46pm
 
Michele, I would love to have the reunion in Omaha. My brother lived there for four years and I visited him often. One place you should go to is the Old Market Place. Please let me know when you decide when this might happen. I live in Iowa and am only six hours away.
Sharon
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Michele
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Re: Midwest Moyamoya
Reply #10 - Feb 18th, 2009 at 9:31pm
 
I was looking at some hotels right near the Old Market!  Some of them can be a bit more expensive, but not everyone would have to stay there! 
God Bless You All!
Michele
PS..Sharon...any suggestions for which weekend?
I am pretty open!  (occlusion joke!  Ha Ha)
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Michele
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Re: Midwest Moyamoya
Reply #11 - Feb 18th, 2009 at 9:38pm
 
Sharon, Reagan, Mark, Nessa, anyone else!!!

What weekends WON'T work..perhaps we should start there!

Just let me know!
Michele
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Michele
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Yankton, USA, SD, South_Dakota
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Re: Midwest Moyamoya
Reply #12 - Feb 18th, 2009 at 9:48pm
 
I just checked and it looks like the Stanford picnic is 5/30..so I will assume not that weekend! I prefer NOT the 4th of July.  Amongst the 7 weekends, there has to be something that will work for us all!
Again, just let me know!
Michele, et al

June 6/7
June 13/14
June 20/21
June 27/28
July 11/2
July 18/19
July 25/26
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Skay
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Re: Midwest Moyamoya
Reply #13 - Feb 18th, 2009 at 11:16pm
 
Michele,  Yes I know the hotels by the Market Place are high. We stayed at a motel between the zoo and the Market.  All the dates you mentioned are okay with me. Just let me know the date the others decide on.  Sharon
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Reagan
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Re: Midwest Moyamoya
Reply #14 - Feb 21st, 2009 at 10:44pm
 
In all honesty, the later in June the better. I am attending the Stanford reunion and also am doing a follow up TCD and follow up appointment with Dr. Steinberg. So I will be in Cali for about 4 nights. If I had a few weeks to recoup between trips, that would be great. However, I'm not the only one attending so whatever date picked, I would work with.

Reagan
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Michele
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Re: Midwest Moyamoya
Reply #15 - Feb 22nd, 2009 at 5:51pm
 
Thanks Reagan!  Sharon is going to get some info from a friend/relative about a decent motel...and I will check with them for availability and go from there.  I hope to set a date soon so people can plan accordingly!  CAN'T WAIT TO MEET YOU ALL!!!!  Wink
Michele
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Michele
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Re: Midwest Moyamoya
Reply #16 - Feb 27th, 2009 at 5:01pm
 
It is looking like June 27&28 weekend. I will get out more info as I get it! If this absolutely won't work for anyone, please let me know ASAP! Thanks....can't wait to see everyone!  Smiley
Michele
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« Last Edit: Feb 27th, 2009 at 5:03pm by Michele »  
 
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Reagan
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Re: Midwest Moyamoya
Reply #17 - Apr 26th, 2009 at 8:55am
 
Are we still planning on the Midwest Moyamoya trip? I havent heard anything for a while and was just wondering.
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Michele
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Re: Midwest Moyamoya
Reply #18 - Apr 27th, 2009 at 1:09am
 
I would like to still do it, and have that weekend still open for it, but I didn't really get any replies after I set that last weekend in June date.  Who would still be interested or available?
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Christie
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Re: Midwest Moyamoya
Reply #19 - May 1st, 2009 at 12:44am
 
Amy and I live in IL and not very far from Omaha NE. Are you all thinking about meeting there? That would sure be great!
      Christie
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1st stroke april 2008
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amy
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Re: Midwest Moyamoya
Reply #20 - May 1st, 2009 at 9:19am
 
i live in texas so that is a little far for me to go
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Reagan
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Re: Midwest Moyamoya
Reply #21 - May 2nd, 2009 at 2:25pm
 
I am game for it also.

Reagan
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Cherry (LuckyMe)
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Re: Midwest Moyamoya
Reply #22 - May 15th, 2009 at 10:30am
 
I'm in IL, I'll go if the date is finalized.
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Michele
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Re: Midwest Moyamoya
Reply #23 - May 19th, 2009 at 1:06am
 
We are tentatively planning on getting together in the chat here tomorrow evening at 8PM central time.  Anyone interested in the Midwest meeting please join us.  Everyone else is welcome too!  The more the merrier.   Smiley
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Michele
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Re: Midwest Moyamoya
Reply #24 - May 20th, 2009 at 7:52pm
 
New details for the.....
MIDWEST MOYAMOYA "MEET UP"
We have planned this for (June 26, 27, 28), based on replies from those interested. I am asking that anyone who wants to join us please send me an email with the following information:
Days you will join us, number of rooms you will need, number of children in your group, etc.
We must have this information for room planning. We are leaning towards utilizing the Carol Hotel in Omaha, Ne. Based on quotes received, available nearby attractions, etc. This looks like the best bet for us (They have a website for those interested). However, we need to have firm numbers regarding rooms before we can get a better price quote from them. Nessa, the ultimate event planner (seriously Smiley), is putting together a sort of itinerary of what we have tentatively planned (nap breaks included LOL). Again this may be somewhat dependent on numbers, so please let me know. There is a minimum number of rooms that will have to be prepaid (I think) before they will give much of a discount. Thanks, and we look forward to meeting you all!! We are stoked Smiley!!! Smiley      
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« Last Edit: May 20th, 2009 at 7:56pm by Michele »  
 
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