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Update on Amy-long over due (Read 2505 times)
Christie
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daughter with moyamoya

Posts: 75
Burnside IL
Update on Amy-long over due
Dec 16th, 2008 at 7:05pm
 
Just to let you all know. Amy and I returned from Ca. last friday by air ambulance. She was directly admitted into a rehab facility in Mo. She is doing well here. They are using some kind of stimulator on her left hand and today she can already make a weak fist. Her concentration isn't very good yet but her memory is getting really good. We are so blessed> I can't even express in words how I feel right now. I will be taking Amy and her children home with me to IL after rehab until she recovers enough to take care of her children and herself. The bypass grafts are doing really good and her incisions look great. I will pray for each of you, because I do know what it is like to go through this. We were at Stanford for almost 7 weeks! What a wonderful Dr Steinburg and staff. We love them very much. Also found out that Teresa and my sisters boyfriends wife are related and Amy had her pic taken with Ms MO. in the mid 80's which is Teresa's neice. Small world isn't it!!!! God Bless you all!,,,,,,,Amys mom
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1st stroke april 2008
1st surgery Nov. 5
2nd surgery Nov. 18
Still recovering from strokes
 
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Lore
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My brother Kevin (Cubbie)
has Moyamoya

Posts: 819
Delaware, USA, usa, 419, 133, OH, Ohio
Gender: female
Re: Update on Amy-long over due
Reply #1 - Dec 16th, 2008 at 9:02pm
 
Hi Christie,

I'm glad to know you and Amy made it home to rehab. This has been a long and trying journey for you both. There's no place like home!    

I'm so relieved to hear Amy is making good progress. Sounds like the rehab program is beneficial to Amy. It takes time and patience but in the end, the payoff is worth it.

Bless you for all you have done for Amy and will be doing by taking Amy and her children home with you. You are an angel.

Dr. Steinberg, Teresa, and the entire Stanford staff were very kind and caring to me and my brother. They are a super group of people and we are forever indebted to them for all they did for my brother.

I know this isn't easy, but hang in there and keep us posted on Amy.

You and Amy continue to be in my thoughts and prayers.

Hugs,

Lore    

 

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"What lies behind us and what lies before us are tiny matters compared to what lies within us." - Ralph Waldo Emerson
 
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grizelda
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Posts: 9
Old Lyme, USA, CT, Connecticut
Gender: female
Re: Update on Amy-long over due
Reply #2 - Dec 17th, 2008 at 8:09am
 
Christie,

So happy to hear Amy is doing well...All of you are in
my thoughts and prayers every day...I had spoken with
Amy many times before her surgery...She was sharing all
the insurance information with me....We both were fighting
to get surgery at Stanford covered...She helped me a great
deal...I finally got approval and I am flying to California
Jan. 7.....surgery is the 14th......please know I will pray
for you all....I know in my heart Amy is going to continue
to improve every day.....please let her know we are all with
her every day.......
Gretchen
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Gretchen
 
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mg12061
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Posts: 946
Albany, USA, usa, 492, 84, NY, New_York
Gender: female
Re: Update on Amy-long over due
Reply #3 - Dec 17th, 2008 at 10:52am
 
I'm so glad to hear you guys are home and Amy is recovering.Sounds liek she's making great progress! My daughter spent a month in rehab after her surgeries and it was a great help to us all.Thanks for the update.I will pray for continued recovery and I hope you all have a healthy happy holiday season.
Mary Grace
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rgrace5  
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KTiller
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Posts: 355
Freeland, USA, usa, 51, 28, WA, Washington
Gender: female
Re: Update on Amy-long over due
Reply #4 - Dec 17th, 2008 at 5:12pm
 
Hi Christie,
I'm so glad to hear that you and Amy are back in Missouri. One more step closer towards Amy being home with her family. Please let her know that her moyamoya family is thinking or her and wishing you all the best in every possible way this holiday season.
Kim
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