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mg12061

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Posts: 946
Albany, USA, usa, 492, 84, NY, New_York
Gender: female

I could really use your help.....
Jan 21^st, 2009 at 11:35am

I know everyone here is well aware of how important Awareness is.Well I am not only passionate about spreading the word about moyamoya but the fact that children DO have strokes.We all know here how uninformed even the medical community is on this subject and slow to diagnose a stroke in a baby or child.My daughter suffered several storkes her last one left her like an infant.She's struggles everyday to do so many things that most people take for granted.I believe that she will become independant one day because she's a fighter and determined to do it all herself.She's my HERO!!! So what I'm asking for is that you follow this link and read....and hopefully you will feel compelled to sign this petition.It's a petition for a Childhood Stroke Awareness Day.Please take a couple of minutes for Kathleen and all our children here who have suffered a stroke.....The great part is that there is a section for comments and you can mention Moyamoya as a possible reason for strokes in children I've already left my message and signed.Thanks in advance from Kathleen and all our children here!
http://www.ipetitions.com/petition/NationalCSAD/
Mary Grace

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gotchlorine Old-Time Poster Offline Our daughter, Tara, lives with MM Posts: 776 San Jose, USA, usa, 24, 158, CA, California Gender:	Re: I could really use your help..... Reply #1 - Jan 21^st, 2009 at 1:10pm Thanks for sharing this, Mary Grace. I definitely voted . . . for all our kids! Jill
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Lore MM.com Benefactor Offline My brother Kevin (Cubbie) has Moyamoya Posts: 819 Delaware, USA, usa, 419, 133, OH, Ohio Gender:	Re: I could really use your help..... Reply #2 - Jan 21^st, 2009 at 6:30pm Mary Grace, Thank you for the opportunity to have a voice for all the children who have stroked and especially those with moyamoya disease. I signed the petition and left a message. I will be watching for May 2010 children stroke awarness day. Hugs to you and Kathleen. Lore
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hrsridermom Senior Poster Offline mother of 19 yr old daughter with MMD Posts: 292 Tampa, USA, FL, Florida Gender:	Re: I could really use your help..... Reply #3 - Jan 21^st, 2009 at 7:57pm You got my signature! Donna
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mlgohsman Junior Poster Offline Failure is NOT a option & giving up would b 2 easy Posts: 97 USA, Saginaw, Michigan Gender:	Re: I could really use your help..... Reply #4 - Jan 21^st, 2009 at 9:37pm Mine too!! i signed it, plus put it in a few blogs and post .. so lets pray we can get as many signatures as we need !!
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mc823923 Junior Poster Offline My dauaghter Annamarie lives with mm Posts: 83 Baton Rouge, USA, usa, 345, 271, LA, Louisiana Gender:	Re: I could really use your help..... Reply #5 - Jan 22^nd, 2009 at 9:18am I just signed petition. Anything to get the word out. It won't stop the disease, but hopefully more people will recognize the signs and be diagnosed and treated properly in the future. Margaret
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mg12061 Old-Time Poster Offline Posts: 946 Albany, USA, usa, 492, 84, NY, New_York Gender:	Re: I could really use your help..... Reply #6 - Jan 22^nd, 2009 at 10:51am THANKS!!!!!! I went to the web site and saw MOYAMOYA on the comments. What a great way to get the word out.Keep it up if you haven't gone signed it yet please check it out and don't forget to mention moyamoya!!! Thanks from Kathleen and all our kids here!!! Mary Grace
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