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Moyamoya.com Forum › Moyamoya Related Topics › Moyamoya Related Information and Support › Marfan Syndrome

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Marfan Syndrome (Read 7310 times)

Taly

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I Love MM.com!

Posts: 18
Oklahoma Panhandle
Gender: female

Marfan Syndrome
Feb 12^th, 2009 at 12:09pm

During my daily search for information i ran across something intresting. I was researching Marfan Syndrome because my family has a HUGE history of it, (I, almost all my cousins, aunts, and my Grandad had Marphans in some shape or form). When i asked Ethan's (my son) surgeon if there was a connection she said that there was a possibility, but Dr Scott said that he personaly hadnt dealt with a marphans case related to MM. I was wondering if there was anyone here who had any info they could share or if they had marphans also. I am just trying to get as much information as humanly possible so that when the surgery comes I am as informed as possible. Thanks a lot.

Taly

PS Thanks for the info links on this page because they have been a HUGE help! That is where i found some of the correlation between the MM & the Marphans.

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Michele Experienced Poster Offline I love YaBB 1G - SP1! Posts: 169 Yankton, USA, SD, South_Dakota Gender:	Re: Marfan Syndrome Reply #1 - Feb 12^th, 2009 at 7:02pm has anyone come across any Chromosome 22 deletion or related disorders in their family? Where did you get the info linking Marfan Syndrome (Chromosome 15) and MMD?? Thanks! Michele
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Taly New Poster Offline I Love MM.com! Posts: 18 Oklahoma Panhandle Gender:	Re: Marfan Syndrome Reply #2 - Feb 13^th, 2009 at 10:36am Honsetly i dont remember what web site it was. Emedicine i think. The surgeon told us that the Marphans was more than likely the cause of the MM. But I havent found out much more than that.
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tuknits Junior Poster Offline Posts: 67 Batavia, IL Gender:	Re: Marfan Syndrome Reply #3 - Feb 13^th, 2009 at 2:49pm Here is the link to the emedicine article that lists Marfans as reported associations with MM Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
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Michele Experienced Poster Offline I love YaBB 1G - SP1! Posts: 169 Yankton, USA, SD, South_Dakota Gender:	Re: Marfan Syndrome Reply #4 - Feb 14^th, 2009 at 2:24am Thanks for the link!
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cheri New Poster Offline I Am the Captain of my ship, The Master of my soul Posts: 25 Rock, USA, usa, 365, 69, MI, Michigan Gender:	Re: Marfan Syndrome Reply #5 - May 22^nd, 2009 at 4:41pm I have read that there is a "link" or association of Moyamoya and certian conditions. I did read there was a connection between moyamoya and Marfans. This is the only site I found so far today, however I know there was more sites connecting the two. Hope this helps anyway. I will send other links if I find them!
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cheri New Poster Offline I Am the Captain of my ship, The Master of my soul Posts: 25 Rock, USA, usa, 365, 69, MI, Michigan Gender:	Re: Marfan Syndrome Reply #6 - May 22^nd, 2009 at 4:58pm http://www.springerlink.com/content/0tyumagyx3h3vypq/
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cheri New Poster Offline I Am the Captain of my ship, The Master of my soul Posts: 25 Rock, USA, usa, 365, 69, MI, Michigan Gender:	Re: Marfan Syndrome Reply #7 - May 22^nd, 2009 at 8:21pm http://caribbean.scielo.org/scielo.php?script=sci_arttext&pid=S0043-31442007000300019&lng=en&nrm=
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