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New Diagnosis (Read 3003 times)
Waz
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Posts: 14
Oakdale, CT
Gender: female
New Diagnosis
Apr 22nd, 2009 at 10:14pm
 
I was diagnosed with moyamoya today at Yale in New Haven, CT.  I am an epileptic and have been suffering with seizures since 1998.  All of the tests that I have been under for the last 8 months at Yale have pointed towards moyamoya and I have an appointment with a specialist coming up in a couple of weeks, this is really overwhelming for me and am glad that there is a site like this for me to vent and find people who are dealing with the same thing.   Undecided
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heatherwaz heatherwaz  
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PaulaMart
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I Love MM.com!

Posts: 84
Spain
Gender: female
Re: New Diagnosis
Reply #1 - Apr 22nd, 2009 at 11:01pm
 
Hi,

You will find in this site a lot of people who will help you with all your doubts and concerns. Fell free to ask any question, and remember that many others are thinking of you and adding their strenght to yours during this time.

Regards,

Paula
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Skay
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Posts: 87
Evansdale, USA, usa, 323, 119, IA, Iowa
Gender: female
Re: New Diagnosis
Reply #2 - Apr 22nd, 2009 at 11:38pm
 
Hi,  As Paula has told you we are all here to help you to support you and give you answers if we can. This is the place to vent because we have all been there. Hope you will keep us up to date on what you find out.

Take care and Godbless, Sharon
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Little Luca
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Whatever it takes

Posts: 346
Somerset West, South Africa
Gender: female
Re: New Diagnosis
Reply #3 - Apr 23rd, 2009 at 3:21am
 
Hi Waz

I'm sorry you have to join this moyamoya family, but it's full of wonderful people. This forum is very active and any concerns you have or support you need is at your fingertips.

Mark (Luca's Dad)
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1st stroke in September 2008, age 10 months
Bi-lateral mm diagnosis
2nd stroke in November 2008, age 1 year old
Left side surgery in December 2008
13 years on now
Doing just great!
 
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mg12061
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Posts: 946
Albany, USA, usa, 492, 84, NY, New_York
Gender: female
Re: New Diagnosis
Reply #4 - Apr 23rd, 2009 at 9:46am
 
Sorry you need this group but Welcome.It's a wonderful resource for support and information even just to have soemone who understands to listen to you.Please keep us posted.My daughter was diagnosed with MM 7 yrs ago she was 5 yrs old.
Mary Grace
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freckles
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Moyamoya Survivor!!

Posts: 86
Lakeland, FL
Gender: female
Re: New Diagnosis
Reply #5 - May 4th, 2009 at 8:55pm
 
Welcome Waz!

Here you will find a group of wonderful people who will be able to answer just about any question you have! Going through something as crazy as moyamoya is made so much easier when you are able to talk it through with people who understand. Please make sure to ask away.

Freckles
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WWW moyamoyagrl moyamoyagrl  
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