Hi Lmom

Welcome to this forum and I'm sorry you're daughter has to join this elite group of fighters.

When Luca was first diagnosed, they did scans on her kidneys to check for blockages that could have caused the stroke, apparantly not that uncommon. Luca's kidneys were clear, but if your daughters pain is in the lower back on either side, it might be worth following up.

It could also be her kidneys struggling to process some of the medication she's on.

Try and get her to drink lots of water (which is essential anyway) to flush her kidneys.

If you feel like sharing your daughters story, you'll never be short of ears here.

Good luck and I'll be thinking of your daughter next week.
Mark (Luca's Dad)

Hey Jody

Where are you? Most of the people on this forum are from the USA and fast asleep while I'm posting.

I'm sure you've learned in your research of moyamoya that it was originally believed to only have afflicted Asians. We actually came very close to taking Luca to Japan for her surgery where they've got a moyamoya clinic with surgeons who have performed many, many bypasses.

I'm really glad to hear that your daughter was not too badly affected by her strokes. After two strokes last year, Luca has been left with compromised eyesight and her right side is weak, but she's showing improvement.

Where are you having the surgery and who is the your neuro-surgeon?

Stay strong
Mark

Oh yeah - surgeon is Dr Dauser.  Your daughter's picture is adorable.

Thank you!  I will ask her neurologist about that.
Jody