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Lmom Junior Poster Offline I Love MM.com! Posts: 53	Daughter in surgery May 21^st, 2009 at 10:28am Hi My daughter Lina is in surgery right now - left side. This is her first surgery. Yesterday was her angiogram and she did great. She should be out in about 3 hours. We are at Texas Childrens - but we live in Kansas. They said she will need surgery on the right side in a couple of weeks. This is not fun. Jody
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Becky Old-Time Poster Offline Stroke10/03, Diagnosed6/04, Unilateral Surgery9/04 Posts: 532 Minneapolis, USA, usa, 303, 84, MN, Minnesota Gender:	Re: Daughter in surgery Reply #1 - May 21^st, 2009 at 12:36pm Jody, I will say a prayer for Lina and yourself. I will pray for a speedy recovery, for family strenght duing the next few weeks, and that the first and the second surgry goes well. Please keep us posted on Lina progress. Just know we are here is you need to ask any questions about anything. Becky
Back to top	What doesn't kill us, makes us stronger. And sometimes leaves a cool looking scar. STA-MCA bypass and EMS Surgeries done at same time at the Mayo clinic IP Logged

gotchlorine Old-Time Poster Offline Our daughter, Tara, lives with MM Posts: 776 San Jose, USA, usa, 24, 158, CA, California Gender:	Re: Daughter in surgery Reply #2 - May 21^st, 2009 at 12:54pm Greetings Jody, This is a tough day for a parent (been there, done that!). My thoughts and prayers are with you. Please keep us posted as you are able, and give Lina a big hug from me, once she's feeling better. Jill
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Lmom Junior Poster Offline I Love MM.com! Posts: 53	Re: Daughter in surgery Reply #3 - May 21^st, 2009 at 1:13pm Thanks! Dr just came out and said she did great. Will be able to see her in about half an hour! Jody
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Becky Old-Time Poster Offline Stroke10/03, Diagnosed6/04, Unilateral Surgery9/04 Posts: 532 Minneapolis, USA, usa, 303, 84, MN, Minnesota Gender:	Re: Daughter in surgery Reply #4 - May 21^st, 2009 at 4:09pm YIPEE!!!! I am glad to hear she made it out okay. She will be sore for a while but take it as slow as she wants and before you know it she jumping for joy. Please keep up the posting of her progress! Becky
Back to top	What doesn't kill us, makes us stronger. And sometimes leaves a cool looking scar. STA-MCA bypass and EMS Surgeries done at same time at the Mayo clinic IP Logged

Christie Junior Poster Offline daughter with moyamoya Posts: 75 Burnside IL	Re: Daughter in surgery Reply #5 - May 21^st, 2009 at 8:35pm So glad to hear that it went well. 1 down and now 1 more to go! Take care of yourself also. I remember all too well being in that same situation. Prayers are with you. Christie
Back to top	1st stroke april 2008 1st surgery Nov. 5 2nd surgery Nov. 18 Still recovering from strokes IP Logged

Islandentity Experienced Poster Offline My son Robert has MM Posts: 151 Drummond Island, USA, usa, 387, 60, MI, Michigan Gender:	Re: Daughter in surgery Reply #6 - May 21^st, 2009 at 11:04pm Jody, I remember all too well the surgeries Robert went through, its not fun but trust that it will get better, and in the mean time if you need people to talk too, a place to vent, or just a e hug you know where to find people going through or have gone through what you have Mike
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Little Luca Senior Poster Offline Whatever it takes Posts: 346 Somerset West, South Africa Gender:	Re: Daughter in surgery Reply #7 - May 22^nd, 2009 at 3:34am Hey Jody I will be thinking of Lina, you and your family through this very difficult time. Just know that we are all here for you. Don't be concerned about the swelling, it's normal. Hang in there and be strong for Lina. Lots of positive thoughts from me to your surgeons hands. Mark (Luca's Dad)
Back to top	1st stroke in September 2008, age 10 months Bi-lateral mm diagnosis 2nd stroke in November 2008, age 1 year old Left side surgery in December 2008 13 years on now Doing just great! IP Logged

PaulaMart Junior Poster Offline I Love MM.com! Posts: 84 Spain Gender:	Re: Daughter in surgery Reply #8 - May 22^nd, 2009 at 8:01am I wish too all the best for Lina and your family. Be strong and take care of yourself. In 3 days all of you will bee better ... sure!!
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Lmom Junior Poster Offline I Love MM.com! Posts: 53	Re: Daughter in surgery Reply #9 - May 23^rd, 2009 at 10:28am Lina has been up walking today and is painting and coloring!!!! Awesome. Isn't it funny how little things can make you so happy. Thank you all for the well wishes. Jody
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pathowell New Poster Offline I love fishing Posts: 9 Hillsboro Ohio Gender:	Re: Daughter in surgery Reply #10 - May 23^rd, 2009 at 9:31pm God bless you Jody. I will pray for your daughter and your family Patty
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NEME New Poster Offline I Love MM.com! Posts: 10	Re: Daughter in surgery Reply #11 - May 24^th, 2009 at 3:23pm Our Thoughts and Prayers our with you and Lina and the family. Our little 4 year old daughter is scheduled for surgery on June 25th and second surgery 30th. We are so happy to hear that Lina is doing good. The Holdren Family
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Lmom Junior Poster Offline I Love MM.com! Posts: 53	Re: Daughter in surgery Reply #12 - May 24^th, 2009 at 5:55pm Thank you all! Lina is being released Monday morning (memorial day). We are staying in town for the rest of the week and going home to KS next weekend! We'll be back for the second surgery soon. Have to check schedules first!
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Lmom Junior Poster Offline I Love MM.com! Posts: 53	Re: Daughter in surgery Reply #13 - May 28^th, 2009 at 10:46am Second surgery is scheduled for June 8! Lina is doing so great. Our surgeon was Dr Dauser in Texas Children's in Houston. He has been a great doctor. Jody
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Little Luca Senior Poster Offline Whatever it takes Posts: 346 Somerset West, South Africa Gender:	Re: Daughter in surgery Reply #14 - May 29^th, 2009 at 2:31am Great news, Jody. Well done to Lina and well done to Dr Dauser. I will keep Lina in my thoughts for round two on 8th June. Stay strong Mark (Luca Dad)
Back to top	1st stroke in September 2008, age 10 months Bi-lateral mm diagnosis 2nd stroke in November 2008, age 1 year old Left side surgery in December 2008 13 years on now Doing just great! IP Logged

NEME

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Re: Daughter in surgery
Reply #15 - May 29^th, 2009 at 3:52pm

That is great! We are so glad to hear she is doing well. So she has no pain at all? Sorry to ask that, but our little 4 year old will have the surgery soon and my big fear is that she will have pain. Is that anything that you can tell us that we need to be aware of? I am so glad to hear Lina is doing well, we will pray for her that second surgery will go well also. Thanks for keeping all of us posted.

Tunde

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Lmom

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Re: Daughter in surgery
Reply #16 - May 29^th, 2009 at 10:43pm

Hi Tunde,

Lina had very little pain after the surgery itself. Her main problems were we found out she is allergic to surgical tape so she got blisters where the tape was - catheter, etc. also a little rash. She also ran a fever for a couple of days and that scared me because she was running a fever when she had her strokes - although they assured me it was fairly normal to run a fever. The other problem she had was after the angiogram she had to lie still for 6 hours and that was hard on a very active little girl! She didn't want to get up and run around, but just to move a little. She has done exceedingly well - the first three days were hard but after that dramatic improvement as several people on this board told me there would be! One day she did too much and we believe had a TIA several days after the surgery, but the drs said she was still fine. No strokes, no seizures. We have returned home for one week and will return to Texas on June 8 for the second surgery.

Thanks everyone!

Jody

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Coqui New Poster Offline I Love MM.com! Posts: 1	Re: Daughter in surgery Reply #17 - May 30^th, 2009 at 9:56am Hi Jody and Family, I just became a member of this website a few minutes ago. After 8 years of being mis-diagnsis, My 25 year old daughter Jae was diagnosed yesterday with Moyamoya. Just wanted to let you know that I will keep you, Lina and your family in my prayers. Wanda (Jae's Mom)
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Lmom Junior Poster Offline I Love MM.com! Posts: 53	Re: Daughter in surgery Reply #18 - May 31^st, 2009 at 9:17am Wanda, 8 Years of misdiagnosis is just horrible! I am glad you have answers know and can get the help your daughter needs. Jody
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cass/kate Experienced Poster Offline Daughter Kate has moyamoya. Posts: 247 Dallas, USA, usa, 270, 251, TX, Texas Gender:	Re: Daughter in surgery Reply #19 - May 31^st, 2009 at 5:51pm Hi Jody - My daughter Kate went 8 years being mis-diagnosed also, but finally had bi-lateral STA-MAC bypasses in 2005. She is 24 and doing well. Our prayers are with Lina. Know all will be well. We are in Dallas. Where in Kansas do y'all live? Hugs, Cass
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Lmom Junior Poster Offline I Love MM.com! Posts: 53	Re: Daughter in surgery Reply #20 - Jun 1^st, 2009 at 1:38pm Cass, We used to live in Plano, TX - we live in Overland Park, KS now. Thanks, Jody
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